Current & Upcoming

Pre-Myectomy Education Session for Individuals SCHEDULED for Surgery with Host Sabrina Cuddy

Oct 09, 2023 6:00PM—7:00PM



Register

Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.**  Any other individuals looking to participate in a general discussion about myectomy…

View More

Newly Diagnosed Online Education Group – Host Linda Montgomery

Oct 10, 2023 7:00PM—8:30PM



Register

Join our online education/support group leader, Lisa Salberg, in this online education session on the topic of being newly diagnosed.  THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA.  Lisa is the Founder and CEO of the HCMA and she continues her journey to educate, advocate, and support…

View More

Transplant Pathway Discussion Group – Hosts Amy Mann and Karen Klimczak

Oct 16, 2023 7:00PM—8:00PM



Register

Join our online education/support group leaders, Amy Mann and Karen Klimczak, in a discussion and general Q&A for individuals facing a transplant pathway.   Amy was diagnosed with HCM at age 5, inherited from her mother. She has numerous family members with HCM, including at least one of her children. She had quite a health journey while trying to…

View More

2023 HCMA Patient Meeting & Masquerade Ball

Oct 21, 2023 7:30AM—9:30PM



Register

  What: 2023 HCMA Patient Meeting / Masquerade Ball Where: Hyatt Regency, Morristown, New Jersey When: October 21st, 2023 – Registration 7:30 AM Day Programming: 8:30 AM – 4:30 PM Evening Event: 6:30 PM – 9:30 PM 2023 Patient Meeting Tentative Schedule Welcome and HCMA update Clinical trials in HCM Shared Decision-Making in Care Myosin…

View More

Online Discussion Group Emotional Support with Host Gwen Mayes

Oct 24, 2023 7:00PM—8:00PM



Register

Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…

View More

Past | Archive