NOTE:  This discussion group is for individuals who have already been REFERRED or EVALUATED for transplant ONLY. This group is not for post-transplant patients. Meet our Pre-Transplant Discussion Group Hosts, Dawn Levitt and Lisa Vecchione Dawn was diagnosed with HCM when she was seven years old, and she received her first heart transplant shortly after her…

The Stanford Center for Inherited Cardiovascular Disease hosts a monthly, peer-facilitated, virtual support group. When: The first Monday of every month (second Monday if there is a national holiday), from 6 pm to 7:30 pm. Where: Zoom webinar (free, registration required, do NOT have to be a Stanford patient to attend) Why: To connect and…

Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed.  THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA.   Note:  Unless otherwise specified, all event start times are displayed Eastern Time Zone. 

Meet online discussion group host, Lynda Neuhausen. Lynda lives in Tampa Bay, Florida and is a single mom of three, ages 19, 21 and 24. She experienced major heart symptoms since age 39, but not diagnosed with HCM until 46 and had 2 myectomies in 2012. Lynda was a retail manager for 20 years and…

Join online discussion group leader, Trudy Tynan. Trudy is retired after 30 years as a reporter with The Associated Press. Trudy was diagnosed with HCM, at the age of 60, and has undergone an alcohol ablation and later an ablation for a-fib at Tufts Medical Center in Boston. She now works part-time as a writing…

Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.**  Any other individuals looking to participate in a general discussion about myectomy…

Please join Debra Rafson in a discussion about "Life with HCM". Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston area; most recently, she…

Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed.  THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA.   Note:  Unless otherwise specified, all event start times are displayed Eastern Time Zone.  **Attendee privacy is important; meetings are recorded…

Join our online education/support group leaders, Amy Mann and Karen Klimczak, in a discussion and general Q&A for individuals facing a transplant pathway.   Karen was diagnosed with HCM at 27 years old, with no family history and after years of passing out/concussions (early 20s) during physical activity.  Having grown up super active: playing tennis, hiking and…

Meet online discussion group leader, Sydelle Zinn. Sydelle was diagnosed with HCM at 53, after she became lightheaded on a trip to the zoo. Her cardiologist made HCM real to her — no alcohol, no caffeine! — and she received a septal myectomy in June 2010. Sydelle lives in Cleveland with her husband, a professor.…