Let’s start advocating together!! It is now time for us to call state legislators and spread the word to gain support for the “Healthy Cardiac Monitoring Act” (HCM Act). You only need a computer and a phone to participate. You will receive a zoom link once you register to join the rest of the participants…

Let’s start advocating together!! It is now time for us to call state legislators and spread the word to gain support for the “Healthy Cardiac Monitoring Act” (HCM Act). You only need a computer and a phone to participate. You will receive a zoom link once you register to join the rest of the participants…

Join our online education/support group leader, Amy Mann, in a discussion and general Q&A for individuals facing a transplant pathway.   

Please Join us for the Stanford University, Stanford, CA – Bighearted Warriors Unite Webinar on Tuesday, October 11th from 9 PM -11:30 PM EST.

Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.**  Any other individuals looking to participate in a general discussion about myectomy…

Join online discussion group leader, Trudy Tynan. Trudy is retired after 30 years as a reporter with The Associated Press. Trudy was diagnosed with HCM, at the age of 60, and has undergone an alcohol ablation and later an ablation for a-fib at Tufts Medical Center in Boston. She now works part-time as a writing…

Join our online education/support group leader, Lisa Salberg, in this online education session on the topic of being newly diagnosed.  THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA.  Lisa is the Founder and CEO of the HCMA and she continues her journey to educate, advocate, and support…

Please join Debra Rafson in a discussion about "Life with HCM". Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston area; most recently, she…

You are invited to join us on Saturday, October 22nd at the Sheraton Parsippany Hotel in Parsippany, NJ for a night of food, fun and entertainment as we honor four NY/Metro area Centers of Excellence. This is an event you won’t want to miss! Out of a great deal of COVID-19 caution space will be limited to…

Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…