Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.**  Any other individuals looking to participate in a general discussion about myectomy…

Join our online education/support group leader, Lisa Salberg, in this online education session on the topic of being newly diagnosed.  THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA.  Lisa is the Founder and CEO of the HCMA and she continues her journey to educate, advocate, and support…

Meet online discussion group host, Lynda Neuhausen. Lynda lives in Tampa Bay, Florida and is a single mom of three, ages 19, 21 and 24. She experienced major heart symptoms since age 39, but not diagnosed with HCM until 46 and had 2 myectomies in 2012. Lynda was a retail manager for 20 years and…

Join online discussion group leader, Trudy Tynan. Trudy is retired after 30 years as a reporter with The Associated Press. Trudy was diagnosed with HCM, at the age of 60, and has undergone an alcohol ablation and later an ablation for a-fib at Tufts Medical Center in Boston. She now works part-time as a writing…

Join our online education/support group leaders, Amy Mann and Karen Klimczak, in a discussion and general Q&A for individuals facing a transplant pathway.   Amy was diagnosed with HCM at age 5, inherited from her mother. She has numerous family members with HCM, including at least one of her children. She had quite a health journey while trying to…

Please join Debra Rafson in a discussion about "Life with HCM". Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston area; most recently, she…

  What: 2023 HCMA Patient Meeting / Masquerade Ball Where: Hyatt Regency, Morristown, New Jersey When: October 21st, 2023 – Registration 7:30 AM Day Programming: 8:30 AM – 4:30 PM Evening Event: 6:30 PM – 9:30 PM 2023 Patient Meeting Tentative Schedule Welcome and HCMA update Clinical trials in HCM Shared Decision-Making in Care Myosin…

Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…

**This discussion group is for individuals looking to participate in a general discussion about myectomy surgery, making the decision to have a myectomy or about life before and after a myectomy.   Meet online discussion group leader, Paul Perlman. Paul is a retired lawyer from Orchard Park, NY. He was diagnosed with HCM in 2013…

Meet online discussion group leader, Sydelle Zinn. Sydelle was diagnosed with HCM at 53, after she became lightheaded on a trip to the zoo. Her cardiologist made HCM real to her — no alcohol, no caffeine! — and she received a septal myectomy in June 2010. Sydelle lives in Cleveland with her husband, a professor.…