09/01/2021 12:00 AM – 10/31/2021 11:55 PM ET October 1st-October 31st Anytime/Anywhere As the weather cools down, join us in getting outdoors for some self care, all while raising funds for a good cause.  Run/Walk/Bike no matter how you 5k join us, $30.00 Donation. REGISTER HERE  CLICK HERE to create your own fundraising page, share with friends and family so they can…

09/01/2021 12:00 AM – 10/31/2021 11:55 PM ET October 1st-October 31st Anytime/Anywhere As the weather cools down, join us in getting outdoors for some self care, all while raising funds for a good cause.  Run/Walk/Bike no matter how you 5k join us, $30.00 Donation. REGISTER HERE  CLICK HERE to create your own fundraising page, share with friends and family so they can…

Join Bob Eldridge for a general discussion group with a focus on family and relationships. The topic for this free online meeting is "Communicating your Diagnosis with Family and Friends". Bob is a husband, father, musician, entertainer and a retired school teacher. He has run discussion groups over the years, including singles groups, and has…

Please join Debra Rafson in a discussion about managing multiple disabilities in addition to HCM. Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston…

  Webinar Registration: https://us02web.zoom.us/webinar/register/WN_Rdj0QNEdTNSJj85QnS-crQ  Topic ICER CTAF Public Meeting on Mavacamten for Hypertrophic Cardiomyopathy Time Oct 22, 2021 12:00 PM in Eastern Time (US and Canada)

Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…

Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…

Meet online discussion group leader, Paul Perlman. Paul is a retired lawyer from Orchard Park, NY. He was diagnosed with HCM in 2013 at the Cleveland Clinic, and received an ICD later that year. His symptoms became more pronounced over the next three years and he had a myectomy in 2016. Since Paul retired in…

Meet online discussion group leader, Sydelle Zinn. Sydelle was diagnosed with HCM at 53, after she became lightheaded on a trip to the zoo. Her cardiologist made HCM real to her — no alcohol, no caffeine! — and she received a septal myectomy in June 2010. Sydelle lives in Cleveland with her husband, a professor.…

Please join us for the Tufts Medical Center Special Edition Bighearted Warriors Unite Tour – Highlights from the International HCM Summit on October 28, 2021 at 6PM EST. Agenda:

Join our online education/support group leader, Lisa Salberg, in a discussion and general Q&A for individuals facing a transplant pathway.  Lisa is the Founder and CEO of the HCMA and she continues her journey to educate, advocate, and support other patients based on her personal experience.