HCMA Committees

Member participation in HCMA committees is vital to the growth and development of the organization. Participation in committees is limited to HCMA Members in good standing, and Members are selected for participation in only one committee per two-year cycle. Members may be invited to join committees outside the regular cycle to fill vacancies or provide additional resources as needed.

Our committee members bring a wealth of experience to the work of our organization.  Whether serving on the COE Review Committee, leading a Legislative Advocacy event, or advising the organization on other committee policy topics - supporting and connecting HCMA members is the common core of the HCMA Committee charge.

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  We encourage you to participate in the HCMA Community programs.

PURPOSE: The Centers of Excellent (COE) Review Committee is an HCMA Standing Committee. The role of the COE Review Committee is to provide oversight and guidance to the HCMA Recognized COEs for the consistency and standardization of the delivery of care for HCM patients.

PURPOSE: The Patient Education Committee is an HCMA Standing Committee. The role of the Patient Education Committee is to provide materials to improve the understanding of HCM.  These materials will be regularly updated and improved to make them as accessible as possible to everyone no matter their reading level, vision or hearing status, or language. The goal of this committee is to give HCM patients tools they need to be active participants in their health care and to give them peace of mind as they cope with their diagnosis.

PURPOSE: The Diversity Committee is an HCMA Standing Committee. The role of the Diversity Committee is to ensure fair and equitable representation of patients and providers of varied ages, races, and ethnicities on all HCMA Standing Committees, social meeting outreach, and patient education.

PURPOSE: The Medical Affairs Committee is an HCMA Standing Committee. The role of the Medical Affairs Committee is to maintain scientific and clinical accuracy as well as rigor of the medical literature and standard of care for HCM that is relied upon or included in all functions and operations of HCMA, its programs, its publications and communications, and its representation to HCM patients, family members, and caregivers.

PURPOSE: The Founding Principles Committee is an HCMA Standing Committee. The role of the Founding Principles Committee is to maintain the principles and values upon which the HCMA was originally formed and continues to operate by as the preeminent advocacy voice of HCM patients, family members, and caregivers.

PURPOSE: The Finance Committee is an HCMA Standing Committee. The role of the Finance Committee is to provide financial analysis, advice, and oversight of the HCMA's budget. Their sole responsibility is to ensure the organization is operating with the financial resources it needs to provide programs and services to the HCMA membership and community.

PURPOSE: The Legislative Advocacy Committee is an HCMA Standing Committee. The role of the Legislative Committee is to maintain a policy agenda for legislative and regulatory initiatives on a state and
federal level to further the interests of the safe and progressive diagnosis and treatment of HCM.

 

 

 

 

Each of the Committees has a unique focus to strengthen the programs of the HCMA.   Time committments vary based upon committee activity.

If you have an interest in serving on a specific committee please fill out the form below.

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