The Audacity of Grief
Can we talk about grief for a moment? We all experience loss, and each loss impacts us differently. There is no rule book for processing grief, and that’s a beautiful thing – processing grief is unique to the individual it happens to. Grief is defined as a specific type of suffering that is often tied…
Read MoreIt’s Emotional Wellness October!
Treating the whole person is essential because your mind, emotional state, and physical symptoms interact. One example is that you can increase an arrhythmia by becoming anxious when it happens. It’s natural to be anxious when your heart does something unusual, but through slow breathing, relaxation, and other coping techniques, you can help yourself feel…
Read MoreSeptal Reduction September
If you have been experiencing symptoms of obstruction, such as shortness of breath, exercise intolerance, light-headedness, or fainting, despite using medications, it might be time to consider septal reduction. The most appropriate septal reduction therapy for each patient depends on several factors, which you can discuss with your HCM team. If you need assistance understanding…
Read MoreNew Sponsor- Viz.ai
The HCMA is happy to announce our new sponsor Viz.ai in the coming months, you will be invited to a webinar to learn more about their methods to detect the undiagnosed. We plan to work closely with our Recognized Centers of Excellence to find the right methods of implantation of AI solutions to aid in…
Read MoreHow patients and families can help build an understanding of HCM care, awareness, and advocacy
Clinical Trials: Innovation has come to HCM through new therapeutic options under investigation. Several trials are open, and several more are planned for later this year or early 2025. So, what is a Clinical Trial? A Clinical trial is a research study that tests a medicine, surgical, or behavioral treatment to see if it works. …
Read MoreHCMA Lori Fund
The HCMA is proud to recognize 51 Centers of Excellence (COE), where patients can be confident they will be cared for by knowledgeable, skilled HCM experts. However, the distance and financial resources needed to reach a COE can be a burden for families. That’s why the HCMA started the Lori Fund in 2023. The Fund…
Read MoreAre you newly diagnosed with HCM, or have your symptoms recently changed?
We understand that having a new diagnosis or changes in your condition can be daunting, but please know you’re not alone. The HCMA is here to support you every step of the way! In addition to the helpful info in this newsletter and on our website, we encourage you to contact us for an Intake…
Read MoreJuly is about COE Care at the HCMA!
Have you ever wondered what a Center of Excellence (COE) is? A COE is a dream team of specialists who work together to provide top-notch care to patients with specific diseases. They follow the best, most up-to-date practices. Many medical facilities strive to become a COE by forming a dedicated team that focuses on treating…
Read MoreHCMA West Coast Tour
Lisa Salberg, CEO and Founder, and I will host two Meet and Greets during our travel on the West Coast in July! La Jolla, CA, “Meet and Greet” on Thursday, July 18th, at Olive & Basil from 6:00 – 8:00 PM PT. Space is limited, so we ask all to register by July 16th for proper headcount and to ensure enough…
Read MoreVolunteer!
The HCMA has many volunteer opportunities to help create the world we want to see for HCM patients and their families. To learn more about HCMA volunteer opportunities and get involved, contact julie@4hcm.org or click HERE. FAQ: What is an HCMA Legislative State Champion? An amazing group of volunteers with A SHARED COMMITMENT TO FIND…
Read MoreVolunteer!
The HCMA has many volunteer opportunities to help create the world we want to see for HCM patients and their families. To learn more about HCMA volunteer opportunities and get involved, contact julie@4hcm.org or click HERE. FAQ: What is an HCMA Ambassador? What if every person with HCM had an accurate diagnosis, and access to…
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