The Audacity of Grief
Can we talk about grief for a moment? We all experience loss, and each loss impacts us differently. There is no rule book for processing grief, and that’s a beautiful thing – processing grief is unique to the individual it happens to. Grief is defined as a specific type of suffering that is often tied…
Read MoreThe University of Maryland – Baltimore, MD
The Hypertrophic Cardiomyopathy Program at the University of Maryland Heart & Vascular Center is Recognized as an HCMA Center of Excellence and the only HCMA-recognized center in the state of Maryland at this time. The University of Maryland’s team of cardiologists, cardiac surgeons, geneticists, electrophysiologists, nutritionists, and physical therapists are ready to treat you and…
Read MoreVolunteer!
Volunteers greatly contribute to the success of the Hypertrophic Cardiomyopathy Association and our commitment to providing support, education, advocacy, and advancement of research, understanding, and care to those with HCM. The tireless dedication of our volunteers gives us the extra hand needed to make our community’s healthcare experiences positive ones. To learn more about HCMA volunteer…
Read MoreLIVE-HCM: Lifestyle and Exercise
There is finally more clarity about exercise for HCM patients. Some doctors say, “Don’t do anything physical,” and others say, “Do whatever you want.” We can likely agree on one thing – they’re both wrong, and the best advice is somewhere in the middle. A recent study of the exercise habits of over 1500 HCM…
Read MoreHCMA travels to policy conference
Last week, I had the privilege to moderate a panel, “Novel Nursing: Helping Patients Adapt to Medical Innovation,” on the challenges and opportunities created by Myosin Inhibitors in Hypertrophic Cardiomyopathy at the PACH Cardiovascular Health Policy Summit in Washington DC. I was joined by Sue Philpott, RN, BSN – Corewell Health in Grand Rapids, MI, and Amy Beatty…
Read MoreLifestyle and Exercise in Hypertrophic Cardiomyopathy (LIVE-HCM) Results Released
Vigorous Exercise in Patients With Hypertrophic Cardiomyopathy – JAMA Cardiology | Original Investigation Exercise has well-established physical and mental health benefits and is an integral part of life for millions of people worldwide. However, for individuals with hypertrophic cardiomyopathy (HCM), the possibility that physical activity may heighten the risk of sudden cardiac death (SCD) has…
Read MoreThe University of Colorado Hospital – Aurora, CO
The University of Colorado is one of our newest HCMA Recognized Centers of Excellence. The UCHealth Team is honored to be recognized and work in partnership with the HCMA to genuinely provide the highest standard of care for patients with Hypertrophic Cardiomyopathy. The mission of the University of Colorado’s HCM Program is to improve the lives of patients with HCM by providing first-class medical care to patients and their…
Read MoreVolunteer!
Volunteers significantly contribute to the success of the Hypertrophic CardiomyopathyAssociation and our commitment to providing support, education, advocacy, andadvancement of research, understanding, and care to those with HCM. Our volunteer’stireless dedication gives an extra hand needed to make our communities healthcareexperiences positive. To learn more about HCMA volunteer opportunities and getinvolved, click here. HCMA Volunteer…
Read MoreHCM Medications
Sabrina Cuddy May is about medical management here at the HCMA. Medical management means using medications and other non-invasive therapies to treat disease and relieve symptoms. It’s exciting that new treatments for HCM are being studied and that the FDA approved Camzyos last year! It is historic for treatments to be targeted for HCM. HCM…
Read MoreIn Her Own Words: Lisa Salberg advocates with a heart.
My WHY – and OUR fight. Between 1 in 250 to 1 in 500 people are impacted by Hypertrophic Cardiomyopathy, a genetic heart condition that took the life of Lisa Salberg’s sister. Lisa, her daughter and many other family members live with this condition. That’s why she’s dedicated her life to advocacy. “Heart disease has…
Read MoreHCMA/Nest Portal – HCMA Founder introduces you to a new way to get educated and stay engaged
We were excited to announce on HCM Awareness Day 2023 our new partnership with Nest Genomics, a provider of services that helps educate patients to achieve the best outcomes in care and shared decision-making. As the HCMA grows, we must find new ways to provide personal attention and scale up to the larger community we…
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