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Life with HCM Discussion Group – Host Debra Rafson – Free Online Discussion Group
Apr 18, 2024 7:00PM—8:00PM
Please join Debra Rafson in a discussion about "Life with HCM". Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston area; most recently, she…
View MoreHCMA In Person Volunteer Opportunity
Apr 20, 2024 8:00AM—12:00PM
Gardner Field
2 Savage Road
Denville, NJ 07834
The HCMA is hosting an AED/Drill Dr Heart outreach in-person event in Denville on April 20 at Little League Opening Day. More details to come!
View MoreTransplant Pathway Discussion Group – Hosts Amy Mann and Karen Klimczak
Apr 22, 2024 7:00PM—8:00PM
Join our online education/support group leaders, Amy Mann and Karen Klimczak, in a discussion and general Q&A for individuals facing a transplant pathway. Amy was diagnosed with HCM at age 5, inherited from her mother. She has numerous family members with HCM, including at least one of her children. She had quite a health journey while trying to…
View MoreOnline Discussion Group Emotional Support with Host Gwen Mayes
Apr 23, 2024 7:00PM—8:00PM
Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…
View MoreAll Things Myectomy with Hosts Paul Perlman and Greg LeValley – Free Online Discussion Group
Apr 24, 2024 7:00PM—8:00PM
**This discussion group is for individuals looking to participate in a general discussion about myectomy surgery, making the decision to have a myectomy or about life before and after a myectomy. Meet online discussion group leader, Paul Perlman. Paul is a retired lawyer from Orchard Park, NY. He was diagnosed with HCM in 2013…
View MoreBighearted Warriors Unite Special Edition Series – Demystifying Social Security (Part 1)
Apr 25, 2024 12:00PM—1:00PM
TOPIC: Social Security 101 – Overview of the Social Security Program – Eligibility Criteria (Retirement, Disability, Survivors)
View MoreICD Discussion Group with Hosts Sydelle Zinn and Karen Newstrom – Free Online Discussion Group
Apr 25, 2024 7:00PM—8:00PM
Meet online discussion group leader, Sydelle Zinn. Sydelle was diagnosed with HCM at 53, after she became lightheaded on a trip to the zoo. Her cardiologist made HCM real to her — no alcohol, no caffeine! — and she received a septal myectomy in June 2010. Sydelle lives in Cleveland with her husband, a professor.…
View MoreNewly Diagnosed Online Education Group – Host Linda Montgomery
Apr 25, 2024 9:30PM—11:00PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA. Note: Unless otherwise specified, all event start times are displayed Eastern Time Zone.
View MoreDrill: Dr. Heart Training
Apr 27, 2024 12:00PM—1:30PM
Denville Municipal Building
1 St. Marys Place
Denville, NJ 07834
Is your team prepared to respond to a cardiac emergency? Are YOU ready? Join a local community organization, the Hypertrophic Cardiomyopathy Association, for a Drill: Dr. Heart training. You'll learn and rehearse the skills needed to recognize a cardiac emergency and coordinate an efficient and potentially lifesaving response. Denville Emergency Manager Wesley Sharples will share…
View MoreBighearted Warriors Unite Special Edition Series – Demystifying Social Security (Part 2)
Apr 30, 2024 12:00PM—1:00PM
Social Security Disability Application Process – The Disability Evaluation, A Walk Through the Cardiovascular Blue Book.
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