Help educate your local healthcare provider about hcm with the HCM Education Academy
What is the HCM Education Academy
HCM Academy is a free digital CME initiative developed with renowned HCM specialists for physicians, aiming to improve HCM patient outcomes by enhancing knowledge and confidence surrounding efficient diagnosis and management.
HCM Academy is a free peer-to-peer and online educational program designed to measurably improve clinician understanding and confidence around HCM. Developed by renowned HCM-experts, the curriculum aims to provide education and awareness on under or misdiagnosis, genetic counseling, delayed diagnosis and undertreatment, and timely referral to specialist centers, to
improve outcomes in HCM patient care.
HCM Academy digital workshops are being delivered by HCM specialists across the US. These free to attend, 60-minute workshops are designed to be informative but interactive: pose questions and discuss practice with like-minded peers. All workshops aim to drive sustainable improvements to clinical practice. In parallel to the workshops, there are free-to-access online CME modules and case studies that
provide greater insight into key HCM topics – you can access these anytime, anywhere via the HCM Academy website, and study at your own pace. You can also hear experiences and perspectives directly from HCM patients themselves.
The HCM Education Academy is for medical providers only. If you are an HCM patient continue to review the page and learn about the opportunity to refer your providers below.
Why should I refer my providers to the academy?
While 1 in 250 seems like good odds for winning the lottery, in most community-based medical practices the 1 in 250 means having HCM makes you somewhat of a rarity. Family and community doctors and general cardiologists may not encounter sufficient HCM cases to keep up with changing surgical and medicinal treatment options.
HCM symptoms are non-specific and overlap with more common cardiac diseases, which can delay diagnosis. Patients may suffer without a correct diagnosis and may not be appropriately referred to specialty care such as a Center of Excellence program. The academy will allow providers to learn and keep up to date with advances. They will be provided tools to support shared decision-making as is indicated as best practice in the 2020 ACC/AHA Guidelines in helping HCM patients.
How can I help? Refer your providers to learn more and reduce diagnosis delay.
We don't all look the same and come in all ages and genders. In the past education has had a good representation of young athletes experiencing a sudden cardiac arrest, or older men and their long-term outcomes with managed care. Today, there is a particular need to improve HCM diagnosis among elderly patients and women. Many family and community doctors, and general cardiologists may regard HCM as a disease of young people. In one study, however, 25% of HCM patients were older than 75 years.
HCM prevalence is similar in males and females. Women, however, are often diagnosed later in life than in men. There is, therefore, a need to raise awareness about HCM in these groups among family and community doctors, and general cardiologists. Referring your provider to the HCM Education Academy will help them learn to look for HCM in all demographics including discussing HCM with families during well-child exams.
I've got HCM and see healthcare professionals outside of a Center of Excellence.
The HCM Education Academy is looking for providers who touch patients' lives to learn more about HCM and determine when it is time to refer a patient to a Center of Excellence (COE).
If you have a provider that you would like to refer to learn more about the HCM Education Academy the link below to provide their information. You may remain anonymous or be mentioned in the referral, it is your choice.