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ICD Discussion Group with Hosts Sydelle Zinn and Karen Newstrom – Free Online Discussion Group
Jul 25, 2024 7:00PM—8:00PM
Meet online discussion group leader, Sydelle Zinn. Sydelle was diagnosed with HCM at 53, after she became lightheaded on a trip to the zoo. Her cardiologist made HCM real to her — no alcohol, no caffeine! — and she received a septal myectomy in June 2010. Sydelle lives in Cleveland with her husband, a professor.…
View MoreNewly Diagnosed Online Education Group – Host Linda Montgomery
Jul 25, 2024 9:30PM—11:00PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA. Note: Unless otherwise specified, all event start times are displayed Eastern Time Zone.
View MoreAll Things Myectomy with Hosts Paul Perlman and Greg LeValley – Free Online Discussion Group
Jul 24, 2024 7:00PM—8:00PM
**This discussion group is for individuals looking to participate in a general discussion about myectomy surgery, making the decision to have a myectomy or about life before and after a myectomy. Meet online discussion group leader, Paul Perlman. Paul is a retired lawyer from Orchard Park, NY. He was diagnosed with HCM in 2013…
View MoreEmotional Support Online Discussion Group with Host Gwen Mayes
Jul 23, 2024 7:00PM—8:00PM
Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…
View MoreSeattle Meet and Greet
Jul 23, 2024 6:30PM—8:30PM
Ivar's Salmon House 401 Northeast Northlake Way Seattle, WA 98105
If you happen to be in Seattle, WA on Tuesday, July 23rd, Lisa Salberg, CEO and Founder of the Hypertrophic Cardiomyopathy Association (HCMA), will be hosting a "Meet and Greet" at Ivar's Salmon House from 6:30 – 8:30 PM PT. There is no charge to register and a light dinner menu and non-alcoholic beverages will be served. ** Space is limited so…
View MoreTransplant Pathway Discussion Group – Host Karen Klimczak
Jul 22, 2024 7:00PM—8:00PM
Join our online education/support group leader, Karen Klimczak, in a discussion and general Q&A for individuals facing a transplant pathway. This event will feature Dr. Robert Pensack who will be presenting at the start of the meeting on the topic of "Exercise, Family, and Health." Karen was diagnosed with HCM at 27 years old, with no family history,…
View MoreNewly Diagnosed Online Education Group – Host Linda Montgomery
Jul 18, 2024 1:00PM—2:30PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA. Note: Unless otherwise specified, all event start times are displayed Eastern Time Zone.
View MoreLife with HCM Discussion Group – Host Debra Rafson – Free Online Discussion Group
Jul 18, 2024 7:00PM—8:00PM
Please join Debra Rafson in a discussion about "Life with HCM". Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston area; most recently, she…
View MoreLa Jolla Meet and Greet
Jul 18, 2024 6:00PM—8:00PM
Olive & Basil 8008 Girard Ave #220, La Jolla, CA 92037
If you happen to be in La Jolla, CA on Thursday, July 18th, Lisa Salberg, CEO and Founder of the Hypertrophic Cardiomyopathy Association (HCMA), will be hosting a “Meet and Greet” at Ivar’s Salmon House from 6:00 – 8:00 PM PT. There is no charge to register and a light dinner menu and non-alcoholic beverages will be served. …
View MoreHCM Symptoms Discussion Group with Host Trudy Tynan – Free Online Discussion Group
Jul 11, 2024 7:00PM—8:00PM
Join online discussion group leader, Trudy Tynan. Trudy is retired after 30 years as a reporter with The Associated Press. Trudy was diagnosed with HCM, at the age of 60, and has undergone an alcohol ablation and later an ablation for a-fib at Tufts Medical Center in Boston. She now works part-time as a writing…
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