Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed.  THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA.   Note:  Unless otherwise specified, all event start times are displayed Eastern Time Zone. 

Please join Debra Rafson in a discussion about "Life with HCM". Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston area; most recently, she…

Meet online discussion group leader, Sydelle Zinn. Sydelle was diagnosed with HCM at 53, after she became lightheaded on a trip to the zoo. Her cardiologist made HCM real to her — no alcohol, no caffeine! — and she received a septal myectomy in June 2010. Sydelle lives in Cleveland with her husband, a professor.…

**This discussion group is for individuals looking to participate in a general discussion about myectomy surgery, making the decision to have a myectomy or about life before and after a myectomy.   Meet online discussion group leader, Paul Perlman. Paul is a retired lawyer from Orchard Park, NY. He was diagnosed with HCM in 2013…

Event Description "Talk it Out" — heartfelt strategies to communicate with the important folks in your life about what it's like living with HCM and how it affects your relationship with them.  During the discussion, we will focus on one group — partners, spouses, children, friends, etc. — and talk through what we want to say and practice saying…

Join our online education/support group leader, Karen Klimczak, in a discussion and general Q&A for individuals facing a transplant pathway.   Karen was diagnosed with HCM at 27 years old, with no family history, and after years of passing out/concussions (early 20s) during physical activity.  Having grown up super active, playing tennis, hiking, and weightlifting, HCM wasn't…

Join online discussion group leader, Trudy Tynan. Trudy is retired after 30 years as a reporter with The Associated Press. Trudy was diagnosed with HCM, at the age of 60, and has undergone an alcohol ablation and later an ablation for a-fib at Tufts Medical Center in Boston. She now works part-time as a writing…

Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.**  Any other individuals looking to participate in a general discussion about myectomy…

Meet online discussion group host, Lynda Neuhausen. Lynda lives in Tampa Bay, Florida and is a single mom of three, ages 19, 21 and 24. She experienced major heart symptoms since age 39, but not diagnosed with HCM until 46 and had 2 myectomies in 2012. Lynda was a retail manager for 20 years and…

November and December are considered the “Season of Giving” months and GivingTuesday is happening on December 3, 2024 this year.  This annual day of celebration is an opportunity for people around the world to use their individual power of generosity to remain connected and support their communities.   Our hope is to encourage people to…