The path to diagnosis can be simple for some, highly complicated, confusing and time-consuming for many.
Some people with HCM may not be properly diagnosed for months, years, or even decades because HCM can mimic other illnesses. Even with a family history of cardiac issues, some people with HCM are not referred to a cardiologist for family screenings.
Many physicians - including cardiologists - are not familiar enough with HCM, and are sometimes fooled by the similarity of some of its symptoms to other medical problems.
The HCMA provides support to the patient on their journey to avoid misdiagnosis and diagnostic delay.
All newly diagnosed HCM patients need some of the testings noted below including ECG, echocardiogram, stress echocardiogram, event/Holter Monitoring, genetic testing, and cardiac MRI.
Some patients may need additional testing including cardiac catheterization, transesophageal echocardiogram, implantable loop recorder, and other testing.