Hypertrophic cardiomyopathy (HCM) is a common genetic disorder that affects people regardless of gender, ethnicity, age or geographic location.


HCM is known by many names and it is important to understand that it is, for the most part, one disease. Oftentimes, those with hypertrophic obstructive cardiomyopathy(HOCM, oHCM), apical hypertrophic cardiomyopathy, or asymmetric septal hypertrophic cardiomyopathy think this is a completely different disease. When in reality it is all hypertrophic cardiomyopathy with varied physical presentations. Put differently, the words "obstructive," "apical," or "asymmetric septal" are just descriptions of the current state of the disease.

This website will expand your knowledge of hypertrophic cardiomyopathy as well as issues important to our community by providing clinically reviewed information, support options and member services.

The HCMA is the preeminent organization improving the lives of those with hypertrophic cardiomyopathy, HCM, preventing untimely deaths and advancing global understanding. Founded in 1996 we are committed to providing support, education, advocacy and advancing research, understanding and care to those with HCM.

Should you have questions at any point while reviewing this website, please reach out the the HCMA office at: 973-983-7429 or email us at support@4hcm.org and we will respond as soon as possible.

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We hope you will join us on February 2nd for an evening of entertainment and education.

Seating is limited, so please register in advance by clicking the following link:

The Hypertrophic Cardiomyopathy Association (HCMA) invites you to join us for a free viewing of the movie “A Man Called Otto” on Thursday, February 2nd, at 6:00 PM EST.  While it is not the movie's primary focus, the main character, Otto, happens to have Hypertrophic Cardiomyopathy (HCM).

The HCMA has been strongly advocating for the HCM patient community for over 25 years, and we feel that Tom Hanks, and the movie directors, did an outstanding job depicting the life of an HCM patient.

HCM is a genetic heart disease that affects between 1 in 200 and 1 in 500 people in the general population, yet many people (as much as 85%) don’t know they have it. If left undiagnosed and without treatment, HCM can potentially result in tragedy.

At the showing, we will share live feedback from patients after the movie concludes, highlighting how the movie resonates with them and the impact HCM has on their lives. We will also use this opportunity to share some of our current legislative initiatives that will greatly benefit your constituents in New Jersey!

As you are aware, there are already laws in place in New Jersey about the student-athlete “Preparticipation Physical Evaluation” and the annual physical examinations of a child ages 19 years old and younger requiring licensed health care professionals to include questions that evaluate a child’s family history related to cardiac conditions as part of these examinations.

The ability of healthcare providers to identify children and families at risk, not only for HCM but for many other cardiac disorders (both genetic and congenital), can be a complete “game changer” when identified early and correctly managed.  These laws are impactful but need updating; we’ve learned so much since these laws were passed!  

We are literally looking to save lives!

 

Support the HCMA and its mission to
advocate for patients with Hypertrophic Cardiomyopathy

CALENDAR OF EVENTS

Signing up for our virtual events can be confusing.

If you are having trouble please check out our step-by-step guide for registration.

Click here: Guide to virtual event registration

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The HCMA is available for media support to discuss current events, HCM in entertainment, new treatments, or life with HCM.  If you have a need about hypertrophic cardiomyopathy please reach out to our media relations team at:

hcmapr@mekkymedia.com