ABOUT the hcma:
The HCMA was founded in 1996 as a 501c3 nonprofit organization. We provide support, advocacy, and education to patients, families, the medical community, and the public about hypertrophic cardiomyopathy while supporting research and fostering the development of treatments.
We support the creation of high volume Center of Excellence care models to ensure all needs of the HCM patient community are met at the highest possible level. We believe in improving global awareness of the risks of this genetic heart disease and ensuring disease understanding, its complete natural history, and treatments are improved until the ultimate eradication of the disease itself.
MEET THE FOUNDEr
Lisa Salberg, Founder, and CEO of the HCMA, began on the journey to educate, advocate, and support other patients based on her experience with HCM. This included medical errors that nearly cost her life, the death of her sister - also due to medical errors- and the diagnosis of several family members.
Lisa has published three books on HCM (available on this site) and several peer-reviewed journal articles spoken internationally on HCM. She has appeared in TV and print interviews advocating for patients' rights, research, and raising awareness of HCM.
BOARD OF DIRECTORS
Billur Dowse
Gordon A.Fox, PhD
Rosemary Conlon
Amit Kalia, MD
Robert B. Lorfink
Martin Maron, MD
Richard Melia, PHD
Kevin J. O’Connor, Esq.
Isaac R. Rodriguez-Chavez, PHD, MS, MHS
Adam Salberg
Lisa Salberg
Sylvia G. Shubert, MHA
Bill RosSi
MICHAEL LYNCH MD
Emeritus Board Members: