
ABOUT the hcma:
The HCMA was founded in 1996 as a 501c3 nonprofit organization. We provide support, advocacy, and education to patients, families, the medical community, and the public about hypertrophic cardiomyopathy while supporting research and fostering the development of treatments.
We support the creation of high volume Center of Excellence care models to ensure all needs of the HCM patient community are met at the highest possible level. We believe in improving global awareness of the risks of this genetic heart disease and ensuring disease understanding, its complete natural history, and treatments are improved until the ultimate eradication of the disease itself.
MEET THE FOUNDEr

Lisa Salberg, Founder, and CEO of the HCMA, began on the journey to educate, advocate, and support other patients based on her experience with HCM. This included medical errors that nearly cost her life, the death of her sister - also due to medical errors- and the diagnosis of several family members.
Lisa has published three books on HCM (available on this site) and several peer-reviewed journal articles spoken internationally on HCM. She has appeared in TV and print interviews advocating for patients' rights, research, and raising awareness of HCM.
BOARD OF DIRECTORS

Susan Blakey

Billur Dowse

Gordon A.Fox, PhD

Amit Kalia, MD

Robert B. Lorfink

Martin Maron, MD

Richard Melia, PHD

Lynn Perry

Isaac R. Rodriguez-Chavez, PHD, MS, MHS

Adam Salberg

Stephen Winters, MD
Emeritus Board Members:
STAFF Members & contracted consultants

Sabrina Cuddy

Julie Russo
Volunteer Coordinator

lindA montgomery
client advocate

Stacey Titus

Carolyn Willis
Membership Coordinator/Office Manager

Ross Hadley

elena morgan, MS

Cody Stubben
Social Media Coordinator

Julie Olsen
Events Coordinator & Fundraising

Olivia Esposito
HCM Academy Coordinator
OUR VOLUNTEER ONLINE DISCUSSION GROUP LEADERS

SYDELLE ZINN
Meet online discussion group host, Sydelle Zinn. Sydelle co-hosts a monthly “ICD” Discussion Group. Click on our event calendar for exact dates and times to register for Sydelle’s online discussion groups. Our free online discussion groups are open to all.

Bob Eldridge
Meet online discussion group host, Bob Eldridge. Bob co-hosts a monthly “General Discussion of Life with HCM” Discussion Group. Click on our event calendar for exact dates and times to register for Bob’s online discussion group. Our free online discussion groups are open to all.

LISA SALBERG
Lisa is HCMA's Founder and CEO. Lisa holds three online discussion groups monthly to educate and support those who are newly diagnosed, on a transplant pathway or preparing for a myectomy. Click on our event calendar for exact dates and times to register for one of Lisa's meetings. Our free online discussion groups are open to all.

GWEN mAYES
Meet online discussion group host, Gwen Mayes. Gwen hosts a monthly “Emotional Support” Discussion Group. Click on our event calendar for exact dates and times to register for Gwen’s online discussion group. Our free online discussion groups are open to all.

Debra Rafson
Meet online discussion group host, Debra Rafson. Debra hosts a monthly “Diagnostic Journey” Discussion Group.
Click on our event calendar for exact dates and times to register for Debra’s online discussion groups. Our free online discussion groups are open to all.

greg levalley
Meet online discussion group host, Greg LeValley. Greg co-hosts a monthly “All Things
Myectomy” Online Discussion Group. Click on our event calendar for exact dates and times to register for Greg’s online discussion groups. Our free online discussion groups are open to all.

PAUL PERLMAN
Meet online discussion group host, Paul
Perlman. Paul co-hosts a monthly “All Things
Myectomy” Discussion Group. Click on our event calendar for exact dates and times to register for Paul’s online discussion group. Our free online discussion groups are open to all.

Karen Newstrom
Meet online discussion group host, Karen Newstrom. Karen co-hosts a monthly “ICD”
Discussion Group. Click on our event calendar for exact dates and times to register for Karen’s online discussion group. Our free online discussion groups are open to all.

Sabrina Cuddy
Meet online discussion group host, Sabrina Cuddy. Sabrina is an alternate host for our monthly “Pre-myectomy” education discussion group. This discussion group is for those preparing for a myectomy. Click on our event calendar for exact dates and times to register for our "Pre-myectomy" online education discussion group. Our free online discussion groups are open to all.

lynda neuhausen
Meet online discussion group host, Lynda Neuhausen. Lynda hosts a monthly “Emotional
Support” Discussion Group. Click on our event calendar for exact dates and times to register for Lynda’s online discussion group. Our free online discussion groups are open to all.

trudy tynan
Meet online discussion group host, Trudy Tynan. Trudy hosts a monthly “HCM Symptoms” Discussion Group. Click on our event calendar for exact dates and times to register for Trudy’s online discussion group. Our free online discussion groups are open to all.