Research

ABOUT the hcma:

The HCMA was founded in 1996 as a 501c3 nonprofit organization. We provide support, advocacy, and education to patients, families, the medical community, and the public about hypertrophic cardiomyopathy while supporting research and fostering the development of treatments.

We support the creation of high volume Center of Excellence care models to ensure all needs of the HCM patient community are met at the highest possible level. We believe in improving global awareness of the risks of this genetic heart disease and ensuring disease understanding, its complete natural history, and treatments are improved until the ultimate eradication of the disease itself.

MEET THE FOUNDER

Salberg

Lisa Salberg, Founder and CEO of the HCMA, began on the journey to educate, advocate, and support other patients based on her personal experience with HCM. This included medical errors that nearly cost her life, the death of her sister - also due to medical errors- and the diagnosis of several family members.

Lisa has published 3 books on HCM (available on this site), several peer reviewed journal articles, spoken internationally on HCM, and has appeared in TV and print interviews advocating for patients rights, research, and raising awareness of HCM.

BOARD OF DIRECTORS

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Susan Blakey

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Billur Dowse

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Gordon A.Fox, PhD

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Carlton A. Hornung, PhD, MPH

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Amit Kalia, MD

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Robert B. Lorfink

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Martin Maron, MD

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Richard Melia

HCMA Video Archive

Lynn Perry

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Isaac R. Rodriguez-Chavez, PHD, MS, MHS

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Adam Salberg

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Stephen Winters, MD

STAFF & VOLUNTEERS

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Sabrina Cuddy

Intake Coordinator

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Julie Russo

Volunteer Coordinator

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Amy Mann

HCMA Meeting Coordinator

HCMA Video Archive

Center of Excellence Coordinator

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Carolyn Willis

Membership Coordinator/Office Manager

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Ross Hadley

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Lisa Kieffer