Welcome The Christ Hospital Health Network HCM Program – Cincinnati, OH

The Christ Hospital HCM Clinic is a multidisciplinary cardiovascular program. The HCM Clinic provides patient-specific care and collaborates with subspecialties within the institution to address the complexity often associated with hypertrophic cardiomyopathy.  The Christ Hospital provides a team of subspecialized cardiologists, electrophysiologists, CT, and Vascular Surgeons with various advanced diagnostic services and treatments.  In addition,…

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Dear Lori

Hello readers! I am sharing a letter I wrote to my sister on October 6, 2023 while sitting in a sesson at the Heart Failure Society of America annual scientific session held in Cleveland Ohio. I intended this letter as a way to talk to my sister who passed away in June 1995. For those…

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Welcome The Christ Hospital Health Network HCM Program – Cincinnati, OH

The Christ Hospital HCM Clinic is a multidisciplinary cardiovascular program. The HCM Clinic provides patient-specific care and collaborates with subspecialties within the institution to address the complexity often associated with hypertrophic cardiomyopathy.  The Christ Hospital provides a team of subspecialized cardiologists, electrophysiologists, CT, and Vascular Surgeons with various advanced diagnostic services and treatments.  In addition,…

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Volunteer!

Our volunteers are true “GEMS” to the entire HCM community and the HCMA has created the Volunteer GEM Awards program to help us formally recognize each of our volunteers individually for their role in helping the HCMA educate, support, and spread awareness to our HCM community. The VGA program will encourage our volunteers to track…

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It’s Emotional Wellness October!

If you’re Newly Diagnosed with HCM or have been living with symptoms for a long time, you may sometimes struggle with the emotional aspects of this condition. The HCMA is here to help you! Here are some of the resources we have available: Twice a month, we offer Emotional Support Discussion Groups via Zoom. These sessions are a great…

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Educate and Advocate

By Dawn Levitt – https://dawnlevittauthor.com/ My experience with the medical system began when I was a young child running around like most little kids do, but I became very short of breath and tired after a brief bit of exercise.  My pediatrician diagnosed me with asthma and gave me an inhaler.  When I was seven…

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HCMA Project Opportunities

September brings many opportunities for our community to learn and share our experiences with HCM through trials, focus groups, and survey work. You have heard us stress the importance of understanding your presentation of HCM and if you are obstructed or non-obstructed.  This is the prime factor in two of our projects. We are also building focus…

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Volunteer!

Volunteers significantly contribute to the success of the Hypertrophic Cardiomyopathy Association and our commitment to providing support, education, advocacy, and advancement of research, understanding, and care to those with HCM. The tireless dedication of our volunteers gives us the extra hand needed to make our community’s healthcare experiences positive. To learn more about HCMA volunteer opportunities…

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Septal Reduction September

When symptoms of obstruction (such as shortness of breath, exercise intolerance, light-headedness, and fainting) persist despite using medications, or if obstruction severely restricts blood flow from the heart to the body, it’s time to consider septal reduction. What kind of septal reduction therapy is suitable for any patient depends on many factors you can discuss…

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Medtronic ICD Recall

What is the recall: The FDA has issued a Class 1 recall of Medtronic ICDs and CRT-Ds, manufactured after 2017, with a glassed feedthrough. Who does it affect: This recall affects only the following Medtronic ICDs: Cobalt™ XT/Cobalt™/Crome™ ICDs and CRT-Ds, a subset of: Claria MRI™/Amplia MRI™/Compia MRI™/Viva™/Brava™ CRT-Ds, a subset of: Visia AF™/Visia AF MRI™/Evera™/Evera MRI™/Primo MRI™/Mirro MRI™…

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