Medical Management May

Medical Management means using medications and other non-invasive therapies to treat disease and relieve symptoms. It’s exciting and historic that new treatments targeted for HCM are being studied and that the FDA approved Camzyos in 2022!  HCM can cause various symptoms depending on how stiff the heart is, how much scarring (fibrosis) there is, and…

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April’s Topic is Genetic Testing

Who should have genetic testing, why, and when? Suppose you have been clinically (through an EKG, echocardiogram, and a visit with a cardiologist) diagnosed with HCM. In that case, most experts recommend that you have genetic testing to determine the underlying reason your heart is too thick. Why does it matter?   Some hearts look like…

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Arrhythmia is the HCMA topic for March

Arrhythmia is the HCMA topic for March An arrhythmia is a problem with the rate or rhythm of your heartbeat. It means that your heart beats too quickly, too slowly, or with an irregular pattern. This can be scary, but many arrhythmias are harmless, and others are very treatable! Some common arrhythmias in HCM are atrial flutter/fibrillation, ventricular tachycardia/fibrillation,…

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February is Heart Month

Here are some HCM basics that everyone should know: Some HCM statistics About 50% of adults with HCM present with symptoms. You can be diagnosed with HCM at any age. It’s common to be diagnosed during the teenage years, but the average age of diagnosis in the HCMA database is 39 years. https://4hcm.org/hcm-development/  70% of those…

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Gratitude

The HCMA theme for December is Gratitude Why practice gratitude? Gratitude has benefits for both mental and physical health as well as our relationships with those around us. When we’re thankful for anything positive in our lives, it leads to a shift in mindset that helps us feel better and take action to stay as…

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November’s theme: weight management

At the HCMA, November is when we’re thinking about weight management. We all know that winter months and holiday foods can lead to potential weight gain, and it happens to the best of us. It’s easy to gain weight with all the less healthy options in front of us – face it, we all love…

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It’s Emotional Wellness October!

If you’re Newly Diagnosed with HCM or have been living with symptoms for a long time, you may sometimes struggle with the emotional aspects of this condition. The HCMA is here to help you! Here are some of the resources we have available: Twice a month, we offer Emotional Support Discussion Groups via Zoom. These sessions are a great…

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Septal Reduction September

When symptoms of obstruction (such as shortness of breath, exercise intolerance, light-headedness, and fainting) persist despite using medications, or if obstruction severely restricts blood flow from the heart to the body, it’s time to consider septal reduction. What kind of septal reduction therapy is suitable for any patient depends on many factors you can discuss…

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July is about COE Care at the HCMA

What is a Center of Excellence (COE)?  A Center of Excellence is a team of specialists who come together to provide high-quality care to patients with a specific disease using accepted best practices. It is common for medical facilities to seek COE status if they have a team working with a particular disease, such as…

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LIVE-HCM: Lifestyle and Exercise

There is finally more clarity about exercise for HCM patients. Some doctors say, “Don’t do anything physical,” and others say, “Do whatever you want.” We can likely agree on one thing – they’re both wrong, and the best advice is somewhere in the middle. A recent study of the exercise habits of over 1500 HCM…

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