The day that changed my life: June 12, 1995

Lori

The day that changed my life was June 12, 1995, a Monday. The phone rang at 5:50am, which is never a good thing. I managed to roll over with my 8-month pregnant belly and answer the phone on the second ring. The voice was familiar but panicked it was my mother. “She is not breathing…

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Lisa, we have your heart. How soon can you be here?

Lisa, age 12

So there I was holding my heart in my hands while a new heartbeat was in my chest. Talk about surreal moments! The path that led to this moment encompasses 36 of my 48 years on this earth and in this one moment, I came face to face with the very thing that I had hated, feared, and loved… my heart.

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Weight loss improves HCM patients’ heart health

Weight management is a challenge for many. Losing weight is a challenge for nearly everyone who tries it. It can be more difficult for many HCM patients because we often take drugs that slow us down. It’s also hard to study: researchers can assign different groups to different diets, but how can they tell who…

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Consequences of obesity for health in HCM patients

Weight management can make a big difference for HCM patients. That’s not just something cardiologists say to lecture you. A 2020 paper, Association of Obesity With Adverse Long-term Outcomes in Hypertrophic Cardiomyopathy, provides some insight. This study by a group of leading HCM researchers from three countries examines the health consequences of body weight in…

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