The Christ Hospital Health Network HCM Program – Cincinnati, OH

The HCMA is going on the road! We are holding our 1st in-person Bighearted Warriors Unite- Featuring The Christ Hospital & Cincinnati Children’s Hospital. Where: The Summit Hotel – 5345 Medpace Way, Cincinnati, OH 45227 When:  Saturday, May 4, 2024  Time:     9 am – 4 pm  Cost:      Admission for 1 – $25.00              …

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Volunteer!

Share Your Story (SYS) Volunteer!  What inspires you?  Sharing your experiences to help educate or encourage others?  Advocating with or for those with whom you share a common goal?  The HCMA has many volunteer opportunities to keep you inspired, fulfilled, and active within the HCM community. To learn more about HCMA volunteer opportunities and get…

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April’s Topic is Genetic Testing

Who should have genetic testing, why, and when? Suppose you have been clinically (through an EKG, echocardiogram, and a visit with a cardiologist) diagnosed with HCM. In that case, most experts recommend that you have genetic testing to determine the underlying reason your heart is too thick. Why does it matter?   Some hearts look like…

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Volunteer!

Share Your Story (SYS) Volunteer!  Welcome Spring!  Our volunteers plant seeds of hope and positive change for the HCM community that blossom year-round. Spring is a time to look around and within and reflect on all that has passed and all that is yet to come. Last month, with Heart Month & HCM Awareness Day,…

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Vanderbilt Heart and Vascular Institute– Nashville, TN

Vanderbilt Heart and Vascular Institute is among the best heart programs in the nation and the top-ranked program in Tennessee. The Genetic Cardiomyopathy Program and the multidisciplinary care team deliver expert care for HCM in adults and children and provide genetic counseling for their families. The Vanderbilt Team has additional board certifications in advanced heart…

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Arrhythmia is the HCMA topic for March

Arrhythmia is the HCMA topic for March An arrhythmia is a problem with the rate or rhythm of your heartbeat. It means that your heart beats too quickly, too slowly, or with an irregular pattern. This can be scary, but many arrhythmias are harmless, and others are very treatable! Some common arrhythmias in HCM are atrial flutter/fibrillation, ventricular tachycardia/fibrillation,…

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Yale New Haven Hospital Heart and Vascular Center – New Haven, CT

Yale New Haven Hospital Heart and Vascular Center offer multidisciplinary services from the latest imaging techniques and genetic profiling of HCM to advanced diagnostic testing, treatment options, and clinical trials – all with an emphasis on compassion and communication. Yale New Haven’s well-established HCM center provides specialized, expert physicians and staff specially trained to manage…

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Volunteer!

Share Your Story (SYS) Happy Heart Month!  February is going to be a busy month for the HCMA but, with the help of our volunteers, it truly makes the load a lot lighter! To learn more about HCMA volunteer opportunities and get involved, contact julie@4hcm.org or click HERE. HCMA Theme of the Month Stories The…

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February is Heart Month

Here are some HCM basics that everyone should know: Some HCM statistics About 50% of adults with HCM present with symptoms. You can be diagnosed with HCM at any age. It’s common to be diagnosed during the teenage years, but the average age of diagnosis in the HCMA database is 39 years. https://4hcm.org/hcm-development/  70% of those…

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Corewell Health (formerly Spectrum Health) HCM Program – Grand Rapids, Michigan

The Hypertrophic Cardiomyopathy Program at Corewell Health (formerly Spectrum Health) in Grand Rapids, Michigan, was founded in 2013 and recognized as an HCMA Center of Excellence in 2017.  The Hypertrophic Cardiomyopathy Program at Corewell Health offers a “comprehensive patient-centered approach to diagnosis, education, and treatment, bringing our resources around our patients wherever possible. We facilitate…

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