The Pulse Newsletter

Have you ever wondered what a Center of Excellence (COE) is? A COE is a dream team of specialists who work together to provide top-notch care to patients with specific diseases. They follow the best, most up-to-date practices. Many medical facilities strive to become a COE by forming a dedicated team that focuses on treating…

Lisa Salberg, CEO and Founder, and I will host two Meet and Greets during our travel on the West Coast in July! La Jolla, CA, “Meet and Greet” on Thursday, July 18th,  at Olive & Basil from 6:00 – 8:00 PM PT.  Space is limited, so we ask all to register by July 16th for proper headcount and to ensure enough…

The HCMA has many volunteer opportunities to help create the world we want to see for HCM patients and their families. To learn more about HCMA volunteer opportunities and get involved, contact julie@4hcm.org or click HERE. FAQ: What is an HCMA Legislative State Champion? An amazing group of volunteers with A SHARED COMMITMENT TO FIND…

The HCMA has many volunteer opportunities to help create the world we want to see for HCM patients and their families. To learn more about HCMA volunteer opportunities and get involved, contact julie@4hcm.org or click HERE. FAQ: What is an HCMA Ambassador? What if every person with HCM had an accurate diagnosis, and access to…

There needs to be more clarity about exercise for HCM patients. Some doctors say, “don’t do anything physical,” and others say, “do whatever you want.” We can likely agree on one thing – they’re both wrong, and the best advice is somewhere in the middle. Experts agree that exercise is healthy for people with HCM.…

The In-Person Bighearted Warriors Unite featuring The Christ Hospital & Cincinnati Children’s event held in Cincinnati, Ohio was a tremendous success, where we were pleased to see so many of you in person. The event commenced with a warm welcome address by Lisa Salberg. The day was focused on educating people about HCM, and it…

The HCMA has many volunteer opportunities to keep you inspired, fulfilled, and active within the HCM community. Are you interested in learning more about becoming a discussion group leader? Are you interested in making a difference through the legislative process at the state or federal levels? How about helping to spread awareness about HCM by…

Medical Management means using medications and other non-invasive therapies to treat disease and relieve symptoms. It’s exciting and historic that new treatments targeted for HCM are being studied and that the FDA approved Camzyos in 2022!  HCM can cause various symptoms depending on how stiff the heart is, how much scarring (fibrosis) there is, and…

The HCMA is going on the road! We are holding our 1st in-person Bighearted Warriors Unite- Featuring The Christ Hospital & Cincinnati Children’s Hospital. Where: The Summit Hotel – 5345 Medpace Way, Cincinnati, OH 45227 When:  Saturday, May 4, 2024  Time:     9 am – 4 pm  Cost:      Admission for 1 – $25.00              …

Share Your Story (SYS) Volunteer!  What inspires you?  Sharing your experiences to help educate or encourage others?  Advocating with or for those with whom you share a common goal?  The HCMA has many volunteer opportunities to keep you inspired, fulfilled, and active within the HCM community. To learn more about HCMA volunteer opportunities and get…