Posts by Linda Montgomery
How patients and families can help build an understanding of HCM care, awareness, and advocacy
Clinical Trials: Innovation has come to HCM through new therapeutic options under investigation. Several trials are open, and several more are planned for later this year or early 2025. So, what is a Clinical Trial? A Clinical trial is a research study that tests a medicine, surgical, or behavioral treatment to see if it works. …
Read MoreHCMAs first Hill Day
Hill Day, February 15th, 2024 This year’s Hill Day Event during Heart Month was a success by all measures. It was our first year participating, and while it was a success, we’ve already come up with ideas on how to make it even better next year. This is what the HCM Community does – make…
Read MoreTrial Participation- There is still time to join!
HCM Clinical Trial Opportunities We’ve been urging you to learn a few important points about your disease because HCM has various presentations and important metrics. Knowing the answers to these questions gives a healthcare provider a snapshot of your disease and also facilitates eligibility for clinical trials. Current trials: If you are interested in any…
Read MoreFree Flights for Medical Appointments
We recently met with a wonderful organization that supplies flights to those in need. It is a non-profit organization that can get you to an HCMA Recognized Center of Excellence. The organization is called Angel Flights East. They are mainly in the North East but can fly up to 1,000 miles. Should your trip be…
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