New York - The heart of the matter
Thank you, New York, for officially declaring HCM Awareness Day in your state!
the hcm act will help identify Cardiac Health issues in patients with a spectrum of Diseases including Hypertrophic cardiomyopathy
Sudden cardiac death (SCD) is a sudden, unexpected death caused by loss of heart function (sudden cardiac arrest). Sudden cardiac death is the largest cause of natural death in the United States, causing about 325,000 adult deaths in the United States each year.
Multiple conditions and risks can make children prone to sudden cardiac arrest (SCA) or sudden cardiac death (SCD) as well as other complications of heart disease. To date, the focus has mainly been only on screening student-athletes.
By the numbers:
One of the disorders in the spectrum is Hypertrophic Cardiomyopathy which is often misdiagnosed or worse yet - overlooked until it is too late.
But with more attention focused on this problem, we can improve the diagnosis delay.
There are close to 10,000 New York State constituents potentially affected with cardiac disorders per EACH State Senator’s District, with over 1,500 being Hypertrophic Cardiomyopathy*
The HCMA has many members from New York. They share a deep understanding of the benefits of childhood screening and early diagnosis.
Here from a New York State Constituent - Help save us now:
When Pricilla Williams lost a daughter to a sudden cardiac arrest she found out about Hypertrophic Cardiomyopathy. She made sure her other children were screened by a cardiologist, and she underwent genetic screening that was inconclusive at this time.
Pricilla had an Alcohol Septal Ablation to improve her quality of life, living with HCM, and had an ICD implanted for security in the event of a sudden cardiac arrest.
Like Pricilla and her family, there are up to 4,200 constituents potentially affected with cardiac disorders per EACH Assembly Member’s District in New York with up to 650 being Hypertrophic Cardiomyopathy.
To view the full report on the prevalence of cardiac disorders in the state of New York: Click here
Please, listen to our patient stories, and take action to support the HCM Act. Draft legislation is available for review: https://4hcm.org/health-cardiac-monitoring-act/