Meet online discussion group leader, Sydelle Zinn. Sydelle was diagnosed with HCM at 53, after she became lightheaded on a trip to the zoo. Her cardiologist made HCM real to her — no alcohol, no caffeine! — and she received a septal myectomy in June 2010. Sydelle lives in Cleveland with her husband, a professor. They have one daughter. She formerly worked at the National Institutes of Health, and is currently a volunteer in Cleveland’s Jewish community. For years, the HCMA has helped Sydelle navigate HCM. As a discussion group leader, she hopes to reassure people new to HCM that we can live with this disease.
Online discussion group leader, Karen Newstrom, welcomes you! Karen is 62 years old, married, a mother of five and grandmother to eight. She taught for eighteen years, seventeen in kindergarten. In her retirement, she enjoys playing oboe and substitutes when needed. Two of Karen's brothers died at age 20 and 34 from HCM. Her father lived with it until 84. Two of Karen's adult children have it, along with one grandchild and a niece. Karen was diagnosed as an adult and received an ICD due to family history. It has fired appropriately eight times! In 2010 she had a successful myectomy. Karen's hope is to give others encouragement on their HCM journey.
**PLEASE NOTE: OUR DISCUSSION GROUP LEADERS ARE VOLUNTEERS AND DEDICATE THEIR PERSONAL TIME TO ASSIST OUR HCM COMMUNITY. PLEASE BE MINDFUL AND BE SURE TO MARK YOUR CALENDAR WITH YOUR MEETING DATE/TIME AS WE HAVE HAD SOME "NO SHOWS" AND YOUR SLOT COULD BE USED FOR OTHERS WHO MAY WANT TO ATTEND. IF YOU NEED TO CANCEL, PLEASE EMAIL SUPPORT@4HCM.ORG. THANK YOU!!!