HCMA Legislative Volunteer State Champion Training

Tentative Agenda:

HCMA Campaign School for HCM Act State Champions

Tuesday, June 18, 2024, 6 – 8:30 PM ET

AGENDA

6 pm ET Welcome

6:05 pm Participant self-introductions

6:15 pm Campaign School overview & objectives

6:20 pm Session I: INSPIRE

• A Timely Diagnosis Saved My Life

• A Children’s Health Imperative 

•  Asking the Right Questions Saved My Son’s Life

• How a Doctor Knowing the Right Questions to Ask Could Have Saved My Daughter’s Life 

• The NJ Legislative Success Story 

6:50 pm Questions & comments

7:00 pm Ten-minute break

7:10 pm Session II:  INFORM

• The Model HCM Act: What it is, how it works 

• 2024 “Halftime Show”:

  • Awareness Day Proclamations

  • State-specific milestones 

  • States still in session

  • Federal level: Congressional Briefing, HEARTS Act

• Laying the Groundwork for 2025:

  • The legislative pathway: Key milestones 

  • Building the campaign strategy & plan

  • Getting started

  • Potential milestone-specific campaign activities         

7:40 pm Questions & comments

7:50 pm Session III:  EQUIP

• Your advocacy toolbox

8:05 pm Questions & comments

8:15 pm Session IV:  EMPOWER

• Going forward: A shared sense of community

• Next steps

8:30 pm Conclude & Adjourn