The Pulse Newsletter

Share Your Story (SYS) Happy Heart Month!  February is going to be a busy month for the HCMA but, with the help of our volunteers, it truly makes the load a lot lighter! To learn more about HCMA volunteer opportunities and get involved, contact julie@4hcm.org or click HERE. HCMA Theme of the Month Stories The…

Here are some HCM basics that everyone should know: Some HCM statistics About 50% of adults with HCM present with symptoms. You can be diagnosed with HCM at any age. It’s common to be diagnosed during the teenage years, but the average age of diagnosis in the HCMA database is 39 years. https://4hcm.org/hcm-development/  70% of those…

The Hypertrophic Cardiomyopathy Program at Corewell Health (formerly Spectrum Health) in Grand Rapids, Michigan, was founded in 2013 and recognized as an HCMA Center of Excellence in 2017.  The Hypertrophic Cardiomyopathy Program at Corewell Health offers a “comprehensive patient-centered approach to diagnosis, education, and treatment, bringing our resources around our patients wherever possible. We facilitate…

HCM Clinical Trial Opportunities  We’ve been urging you to learn a few important points about your disease because HCM has various presentations and important metrics. Knowing the answers to these questions gives a healthcare provider a snapshot of your disease and also facilitates eligibility for clinical trials.   Current trials: If you are interested in any…

We have the plan and the road map and, with the help of our volunteers, we will reach our destination to ensure our mission to provide support, education, advocacy and care to those with HCM. To learn more about HCMA volunteer opportunities and get involved, contact julie@4hcm.org or click HERE. Share Your Story (SYS) HCMA…

You must advocate for yourself to ensure you get the best care for your HCM. An essential first step is having a plan that includes the tests you will likely need and how often you should see your cardiologist. To make this planning more manageable, the HCMA offers Navigation Calls. Members can take advantage of…

Our volunteers give the HCM community so many things to be grateful for!  They generously share their hearts, experiences and time to help so many and we are truly thankful for each and every one of you! There are so many more who are willing to be a part of our mission to provide support,…

Duke Hypertrophic Cardiomyopathy Center –  Durham, NC The Duke Hypertrophic Cardiomyopathy Center has been an HCMA Center of Excellence since 2018 and is a part of the Duke Heart Center in Durham, North Carolina. “We have created a dedicated, multi-disciplinary team of physicians, nurses, advanced practice providers, and genetic counselor who are focused on providing personalized,…

The Hypertrophic Cardiomyopathy Association played a key role at this fall’s HFSA and AHA conferences, actively engaging as exhibitors and offering valuable educational opportunities for the medical community. Their presence emphasized a dedication to increasing awareness and fostering discussions on hypertrophic cardiomyopathy, contributing to the broader conversation on cardiovascular health. Through their participation, the association…

The HCMA theme for December is Gratitude Why practice gratitude? Gratitude has benefits for both mental and physical health as well as our relationships with those around us. When we’re thankful for anything positive in our lives, it leads to a shift in mindset that helps us feel better and take action to stay as…