Past | All
HCM Symptoms Discussion Group with Host Trudy Tynan – Free Online Discussion Group
Jun 13, 2024 7:00PM—8:00PM
Join online discussion group leader, Trudy Tynan. Trudy is retired after 30 years as a reporter with The Associated Press. Trudy was diagnosed with HCM, at the age of 60, and has undergone an alcohol ablation and later an ablation for a-fib at Tufts Medical Center in Boston. She now works part-time as a writing…
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Pre-Myectomy Education Session for Individuals SCHEDULED for Surgery with Host Sabrina Cuddy
Jun 10, 2024 6:00PM—7:00PM
Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.** Any other individuals looking to participate in a general discussion about myectomy…
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Emotional Support Discussion with Host Lynda Neuhausen – Free Online Discussion Group
Jun 05, 2024 6:30PM—7:30PM
Meet online discussion group host, Lynda Neuhausen. Lynda lives in Tampa Bay, Florida and is a single mom of three, ages 19, 21 and 24. She experienced major heart symptoms since age 39, but not diagnosed with HCM until 46 and had 2 myectomies in 2012. Lynda was a retail manager for 20 years and…
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Newly Diagnosed Online Education Group – Host Linda Montgomery
Jun 04, 2024 7:00PM—8:30PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA. Note: Unless otherwise specified, all event start times are displayed Eastern Time Zone.
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Emotional Support Online Discussion Group with Host Gwen Mayes
May 28, 2024 7:00PM—8:00PM
Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…
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ICD Discussion Group with Hosts Sydelle Zinn and Karen Newstrom – Free Online Discussion Group
May 23, 2024 7:00PM—8:00PM
Meet online discussion group leader, Sydelle Zinn. Sydelle was diagnosed with HCM at 53, after she became lightheaded on a trip to the zoo. Her cardiologist made HCM real to her — no alcohol, no caffeine! — and she received a septal myectomy in June 2010. Sydelle lives in Cleveland with her husband, a professor.…
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Newly Diagnosed Online Education Group – Host Linda Montgomery
May 23, 2024 9:30PM—11:00PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA. Note: Unless otherwise specified, all event start times are displayed Eastern Time Zone.
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All Things Myectomy with Hosts Paul Perlman and Greg LeValley – Free Online Discussion Group
May 22, 2024 7:00PM—8:00PM
**This discussion group is for individuals looking to participate in a general discussion about myectomy surgery, making the decision to have a myectomy or about life before and after a myectomy. Meet online discussion group leader, Paul Perlman. Paul is a retired lawyer from Orchard Park, NY. He was diagnosed with HCM in 2013…
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Transplant Pathway Discussion Group – Host Karen Klimczak
May 20, 2024 7:00PM—8:00PM
Join our online education/support group leader, Karen Klimczak, in a discussion and general Q&A for individuals facing a transplant pathway. Karen was diagnosed with HCM at 27 years old, with no family history, and after years of passing out/concussions (early 20s) during physical activity. Having grown up super active, playing tennis, hiking, and weightlifting, HCM wasn't…
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Life with HCM Discussion Group – Host Debra Rafson – Free Online Discussion Group
May 16, 2024 7:00PM—8:00PM
Please join Debra Rafson in a discussion about "Life with HCM". Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston area; most recently, she…
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HCM Symptoms Discussion Group with Host Trudy Tynan – Free Online Discussion Group
Jun 13, 2024 7:00PM—8:00PM
Join online discussion group leader, Trudy Tynan. Trudy is retired after 30 years as a reporter with The Associated Press. Trudy was diagnosed with HCM, at the age of 60, and has undergone an alcohol ablation and later an ablation for a-fib at Tufts Medical Center in Boston. She now works part-time as a writing…
View MorePre-Myectomy Education Session for Individuals SCHEDULED for Surgery with Host Sabrina Cuddy
Jun 10, 2024 6:00PM—7:00PM
Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.** Any other individuals looking to participate in a general discussion about myectomy…
View MoreEmotional Support Discussion with Host Lynda Neuhausen – Free Online Discussion Group
Jun 05, 2024 6:30PM—7:30PM
Meet online discussion group host, Lynda Neuhausen. Lynda lives in Tampa Bay, Florida and is a single mom of three, ages 19, 21 and 24. She experienced major heart symptoms since age 39, but not diagnosed with HCM until 46 and had 2 myectomies in 2012. Lynda was a retail manager for 20 years and…
View MoreNewly Diagnosed Online Education Group – Host Linda Montgomery
Jun 04, 2024 7:00PM—8:30PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA. Note: Unless otherwise specified, all event start times are displayed Eastern Time Zone.
View MoreEmotional Support Online Discussion Group with Host Gwen Mayes
May 28, 2024 7:00PM—8:00PM
Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…
View MoreICD Discussion Group with Hosts Sydelle Zinn and Karen Newstrom – Free Online Discussion Group
May 23, 2024 7:00PM—8:00PM
Meet online discussion group leader, Sydelle Zinn. Sydelle was diagnosed with HCM at 53, after she became lightheaded on a trip to the zoo. Her cardiologist made HCM real to her — no alcohol, no caffeine! — and she received a septal myectomy in June 2010. Sydelle lives in Cleveland with her husband, a professor.…
View MoreNewly Diagnosed Online Education Group – Host Linda Montgomery
May 23, 2024 9:30PM—11:00PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA. Note: Unless otherwise specified, all event start times are displayed Eastern Time Zone.
View MoreAll Things Myectomy with Hosts Paul Perlman and Greg LeValley – Free Online Discussion Group
May 22, 2024 7:00PM—8:00PM
**This discussion group is for individuals looking to participate in a general discussion about myectomy surgery, making the decision to have a myectomy or about life before and after a myectomy. Meet online discussion group leader, Paul Perlman. Paul is a retired lawyer from Orchard Park, NY. He was diagnosed with HCM in 2013…
View MoreTransplant Pathway Discussion Group – Host Karen Klimczak
May 20, 2024 7:00PM—8:00PM
Join our online education/support group leader, Karen Klimczak, in a discussion and general Q&A for individuals facing a transplant pathway. Karen was diagnosed with HCM at 27 years old, with no family history, and after years of passing out/concussions (early 20s) during physical activity. Having grown up super active, playing tennis, hiking, and weightlifting, HCM wasn't…
View MoreLife with HCM Discussion Group – Host Debra Rafson – Free Online Discussion Group
May 16, 2024 7:00PM—8:00PM
Please join Debra Rafson in a discussion about "Life with HCM". Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston area; most recently, she…
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