Past | All
Pre-Myectomy Education Session for Individuals SCHEDULED for Surgery with Host Paul Perlman
Nov 28, 2023 6:00PM—7:00PM
Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.** Any other individuals looking to participate in a general discussion about myectomy…
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All Things Myectomy with Hosts Paul Perlman and Greg LeValley – Free Online Discussion Group
Nov 22, 2023 7:00PM—8:00PM
**This discussion group is for individuals looking to participate in a general discussion about myectomy surgery, making the decision to have a myectomy or about life before and after a myectomy. Meet online discussion group leader, Paul Perlman. Paul is a retired lawyer from Orchard Park, NY. He was diagnosed with HCM in 2013…
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Emotional Support Online Discussion Group with Host Gwen Mayes
Nov 21, 2023 7:00PM—8:00PM
Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…
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Transplant Pathway Discussion Group – Hosts Amy Mann and Karen Klimczak
Nov 20, 2023 7:00PM—8:00PM
Join our online education/support group leaders, Amy Mann and Karen Klimczak, in a discussion and general Q&A for individuals facing a transplant pathway. Amy was diagnosed with HCM at age 5, inherited from her mother. She has numerous family members with HCM, including at least one of her children. She had quite a health journey while trying to…
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Life with HCM Discussion Group – Host Debra Rafson – Free Online Discussion Group
Nov 16, 2023 7:00PM—8:00PM
Please join Debra Rafson in a discussion about "Life with HCM". Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston area; most recently, she…
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Newly Diagnosed Online Education Group – Host Linda Montgomery
Nov 16, 2023 9:30PM—11:00PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA.
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Pre-Myectomy Education Session for Individuals SCHEDULED for Surgery with Host Paul Perlman
Nov 13, 2023 6:00PM—7:00PM
Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.** Any other individuals looking to participate in a general discussion about myectomy…
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HCM Symptoms Discussion Group with Host Trudy Tynan – Free Online Discussion Group
Nov 09, 2023 7:00PM—8:00PM
Join online discussion group leader, Trudy Tynan. Trudy is retired after 30 years as a reporter with The Associated Press. Trudy was diagnosed with HCM, at the age of 60, and has undergone an alcohol ablation and later an ablation for a-fib at Tufts Medical Center in Boston. She now works part-time as a writing…
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Newly Diagnosed Online Education Group – Host Linda Montgomery
Nov 07, 2023 7:00PM—8:30PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA.
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Emotional Support Discussion with Host Lynda Neuhausen – Free Online Discussion Group
Nov 01, 2023 6:30PM—7:30PM
Meet online discussion group host, Lynda Neuhausen. Lynda lives in Tampa Bay, Florida and is a single mom of three, ages 19, 21 and 24. She experienced major heart symptoms since age 39, but not diagnosed with HCM until 46 and had 2 myectomies in 2012. Lynda was a retail manager for 20 years and…
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Pre-Myectomy Education Session for Individuals SCHEDULED for Surgery with Host Paul Perlman
Nov 28, 2023 6:00PM—7:00PM
Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.** Any other individuals looking to participate in a general discussion about myectomy…
View MoreAll Things Myectomy with Hosts Paul Perlman and Greg LeValley – Free Online Discussion Group
Nov 22, 2023 7:00PM—8:00PM
**This discussion group is for individuals looking to participate in a general discussion about myectomy surgery, making the decision to have a myectomy or about life before and after a myectomy. Meet online discussion group leader, Paul Perlman. Paul is a retired lawyer from Orchard Park, NY. He was diagnosed with HCM in 2013…
View MoreEmotional Support Online Discussion Group with Host Gwen Mayes
Nov 21, 2023 7:00PM—8:00PM
Greetings from online discussion group leader, Gwen Mayes! Gwen is in her mid-60s, and has had symptoms of HCM since childhood. She was diagnosed in her 20s, and has done well with medication and lifestyle changes. Gwen is followed at two COEs and by a local cardiologist. To her, the frightening arrhythmias and emotional toll…
View MoreTransplant Pathway Discussion Group – Hosts Amy Mann and Karen Klimczak
Nov 20, 2023 7:00PM—8:00PM
Join our online education/support group leaders, Amy Mann and Karen Klimczak, in a discussion and general Q&A for individuals facing a transplant pathway. Amy was diagnosed with HCM at age 5, inherited from her mother. She has numerous family members with HCM, including at least one of her children. She had quite a health journey while trying to…
View MoreLife with HCM Discussion Group – Host Debra Rafson – Free Online Discussion Group
Nov 16, 2023 7:00PM—8:00PM
Please join Debra Rafson in a discussion about "Life with HCM". Debra was diagnosed with HCM in 2011 and had a septal myectomy and ICD implant at Tufts Medical Center in 2016. She spent most of her career in professional theatre as a stage manager and managing director in the Boston area; most recently, she…
View MoreNewly Diagnosed Online Education Group – Host Linda Montgomery
Nov 16, 2023 9:30PM—11:00PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA.
View MorePre-Myectomy Education Session for Individuals SCHEDULED for Surgery with Host Paul Perlman
Nov 13, 2023 6:00PM—7:00PM
Join this "forward facing" education session about what to expect before and after your upcoming myectomy surgery. There will be an opportunity for Q&A for participants at the end of the session. **NOTE: This education/support group is for patients scheduled for myectomy surgery in the next two months.** Any other individuals looking to participate in a general discussion about myectomy…
View MoreHCM Symptoms Discussion Group with Host Trudy Tynan – Free Online Discussion Group
Nov 09, 2023 7:00PM—8:00PM
Join online discussion group leader, Trudy Tynan. Trudy is retired after 30 years as a reporter with The Associated Press. Trudy was diagnosed with HCM, at the age of 60, and has undergone an alcohol ablation and later an ablation for a-fib at Tufts Medical Center in Boston. She now works part-time as a writing…
View MoreNewly Diagnosed Online Education Group – Host Linda Montgomery
Nov 07, 2023 7:00PM—8:30PM
Newly Diagnosed
Join our online education/support group leader, Linda Montgomery, in this online education session on the topic of being newly diagnosed. THIS EDUCATION SESSION IS FOR NEWLY DIAGNOSED (2 YEARS OR LESS) OR FOR INDIVIDUALS NEW TO THE HCMA.
View MoreEmotional Support Discussion with Host Lynda Neuhausen – Free Online Discussion Group
Nov 01, 2023 6:30PM—7:30PM
Meet online discussion group host, Lynda Neuhausen. Lynda lives in Tampa Bay, Florida and is a single mom of three, ages 19, 21 and 24. She experienced major heart symptoms since age 39, but not diagnosed with HCM until 46 and had 2 myectomies in 2012. Lynda was a retail manager for 20 years and…
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