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George Dooley Memorial
It’s been 24 years – and we will never forget. Twenty-four years without my brother, George, who was also a son, husband, father, teacher, coach and so much more than the roles he played. George died at the young age of 41 from Hypertrophic Cardiomyopathy (HCM), leaving behind a wife, 2 small children, and family…
Read MoreEducate and Advocate
By Dawn Levitt – https://dawnlevittauthor.com/ My experience with the medical system began when I was a young child running around like most little kids do, but I became very short of breath and tired after a brief bit of exercise. My pediatrician diagnosed me with asthma and gave me an inhaler. When I was seven…
Read MoreLifestyle and Exercise in Hypertrophic Cardiomyopathy (LIVE-HCM) Results Released
Vigorous Exercise in Patients With Hypertrophic Cardiomyopathy – JAMA Cardiology | Original Investigation Exercise has well-established physical and mental health benefits and is an integral part of life for millions of people worldwide. However, for individuals with hypertrophic cardiomyopathy (HCM), the possibility that physical activity may heighten the risk of sudden cardiac death (SCD) has…
Read More504 Plans and HCM
We understand how challenging it can be to manage life with HCM, and we want to lend a hand.As such, this is the first in a series of short articles to help to get you started concerningissues such as a 504 plan for your child’s school. Other examples are, what qualifies you forSocial Security Disability…
Read MoreCardiac implantable device infections
The HCMA participated in an American Heart Association summit of more than 40 health care professionals to bridge gaps in awareness, detection, and appropriate treatment of cardiac implantable electronic device (CIED) infections.
Read MoreCYTOKINETICS AFICAMTEN RESEARCH
REDWOOD-HCM OLE REDWOOD-HCM OLE: First Long-Term Data from Open Label Extension Cytokinetics’ also announced positive data relating to aficamten from REDWOOD-HCM OLE (Randomized Evaluation of Dosing With CK-274 in Obstructive Outflow Disease in HCM Open Label Extension) and the results from two additional analyses of omecamtiv mecarbil from GALACTIC-HF (Global Approach to Lowering Adverse Cardiac Outcomes Through Improving Contractility in Heart Failure), all presented in Late-Breaking Science Sessions at Heart Failure 2022, an International Congress of the European Society of Cardiology.…
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