News & Updates
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LIVE-HCM: Lifestyle and Exercise
There is finally more clarity about exercise for HCM patients. Some doctors say, “Don’t do anything physical,” and others say, “Do whatever you want.” We can…
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HCMA Travels to Policy Conference
Last week, I had the privilege to moderate a panel, “Novel Nursing: Helping Patients Adapt to Medical Innovation,” on the challenges and opportunities created by Myosin…
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Lifestyle and Exercise in Hypertrophic Cardiomyopathy (LIVE-HCM) Results Released
Vigorous Exercise in Patients With Hypertrophic Cardiomyopathy – JAMA Cardiology | Original Investigation Exercise has well-established physical and mental health benefits and is an integral part…
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The University of Colorado Hospital – Aurora, CO
The University of Colorado is one of our newest HCMA Recognized Centers of Excellence. The UCHealth Team is honored to be recognized and work in partnership…
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Volunteer!
Volunteers significantly contribute to the success of the Hypertrophic Cardiomyopathy Association and our commitment to providing support, education, advocacy, and advancement of research, understanding, and care…
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HCM Medications
Sabrina Cuddy May is about medical management here at the HCMA. Medical management means using medications and other non-invasive therapies to treat disease and relieve symptoms.…
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In Her Own Words: Lisa Salberg Advocates with a Heart.
My WHY – and OUR fight. Between 1 in 250 to 1 in 500 people are impacted by Hypertrophic Cardiomyopathy, a genetic heart condition that took…
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HCMA/Nest Portal – HCMA Founder Introduces You to a New Way to Get Educated and Stay Engaged
We were excited to announce on HCM Awareness Day 2023 our new partnership with Nest Genomics, a provider of services that helps educate patients to achieve…
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Problems with Generic Metoprolol
Background Many HCM patients have issues with metoprolol, the beta-blocker most widely prescribed for HCM. There may be multiple reasons for this, but a key one…
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A Man Called Otto
A true MUST-see for the HCM Community. Today I should be calling my sister and signing… “when I’m 64”, but instead, I will remember the beautiful…
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Responding to Sudden Cardiac Arrest: The Damar Hamlin Teachable Moment
Commotio Cordis appears to have occurred at the Bill’s game, Monday, January 2, 2023, with the collapse of Damar Hamlin. If you don’t know what this…
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The Holidays Can Be Healthy for Your Heart
We’ve all had the experience: holidays can mean eating too much (much of which isn’t good for you), drinking too much, and getting no exercise. It…
