Bighearted Blog

9 Years with Brandy – A Reflection

Lisa’s original heart, now a teaching tool for others to see HCM in real time! **Celebrating Nine Remarkable Years** Today, I find myself reflecting…

The Price of Love: A Tribute to Esther Reflections from Lisa Salberg, Founder and CEO: It was the late 1990’s when I first heard…

Are you newly diagnosed with HCM, or have your symptoms recently changed? We understand that having a new diagnosis or changes in your condition…

Summer, greetings to all our big-hearted friends As July approaches, our focus is already on the fall and preparing for some major events, including…

Pregnancy is a stress on the body even for healthy people. When we have a serious disease, we tend to have even more questions.…

by Gordon Fox: 5th in a series You’ve been told that you had a high risk – say, 5% – of something dangerous, like…

June 2025 is upon us and with it comes a great deal of mixed emotions for me and the basis of the founding of…

There needs to be more clarity about exercise for HCM patients. Some doctors say, “don’t do anything physical,” and others say, “do whatever you…

by Gordon Fox: 4th in a series Risk is estimated from data Risk estimates come from data on patients. The fact that the numbers…

by Gordon Fox: 3rd in a series Risk is a concept we have encountered many times during our HCM journeys, and we want to…

I do not claim to be a political expert, but I do know what I am – a passionate patient advocate who has seen…

Greetings to all of our Bighearted friends, We have certainly had an eventful April and there are many updates in this letter to bring…