News & Updates
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National Mental Health Month
In recognition of Mental Health Month, the HCMA is working to raise awareness of trauma and the impact it can have on the physical, emotional, and…
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The Mavacamten Marathon
CamzyosApproval This is an exciting time for the HCM Community. The FDA has approved Mavacamten under the brand name CAMZYOS , the first-in-class medication for symptomatic…
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Student Athlete Screenings – COVID
We recently became aware of a policy of a New Jersey family medical practitioner (in your region) that has the ability to create significant misinformation, confusion,…
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Updated Thinking on HCM Genetics
Quick summary Since around 1990, HCM has been regarded as a disease caused entirely by single mutation s in genes affecting a protein in the cardiac…
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Mavacamten Instead of Septal Reduction?
Many people first discover they have HCM because blood flow out of their heart is obstructed. Some of these patients eventually need to have their septums…
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Two New State-Of-The-Art Reviews on HCM
An expert panel of HCM doctors published two state-of-the-art reviews in the Feb. 1, 2022 issue of Journal of the American College of Cardiology. The reviews…
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Fitness in HCM
Did you resolve to get more active this year? There is a lot of confusion about exercise for HCM patients. Some doctors advise “don’t do anything…
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Ever Wonder Who’s at the Center of Patient-Centered Care? Look Again
HCMA and ICER – what did we learn? by Lisa Salberg, Founder and CEO of the Hypertrophic Cardiomyopathy Association 11/30/2021 Of all the players in the…
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Thanksgiving and Gratitude
It’s Thanksgiving in the U.S. But we’re not going to list things we should be thankful for, or rehash the history of the holiday. Instead, let’s…
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ICER Publishes Final Evidence Report and Policy Recommendations on Mavacamten for Hypertrophic Cardiomyopathy
ICER has released its evidence report and recommendations. Here is a list of highlights: To read the entire report click here The post ICER Publishes Final…
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The Day That Changed My Life: June 12, 1995
This post was published on the now-closed HuffPost Contributor platform. By Lisa Flanigan Salberg, Contributor. Founder/CEO Hypertrophic Cardiomyopathy Association 06/12/2017 The day that changed my life…
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Lisa, We Have Your Heart. How Soon Can You Be Here?
originally posted February 24, 2017 Huffington Post by Lisa Salberg So there I was holding my heart in my hands while a new heartbeat was in…
