Stacey Titus • May 1, 2023
The University of Colorado Hospital – Aurora, CO

The University of Colorado is one of our newest HCMA Recognized Centers of Excellence. The UCHealth Team is honored to be recognized and work in partnership with the HCMA to genuinely provide the highest standard of care for patients with Hypertrophic Cardiomyopathy. The mission of the University of Colorado’s HCM Program is to improve the lives of patients with HCM by providing first-class medical care to patients and their families, by educating others and increasing the awareness of HCM, and by participating in innovative research to advance the field. The UC Health Team provides multidisciplinary care across the spectrum of the disease, with all adult specialists in a single location and pediatric specialists on an adjacent campus. The program’s values are patients first, integrity, and excellence.

The University of Colorado team consists of the following members:

David Raymer MD and Edward Gill MD as Co-directors

Electrophysiology: Alexis Tumolo MD

Pediatrics/Pediatric Electrophysiology: Stephanie Nakano MD

CT Surgery: Joseph Cleveland, MD

Genetics: Matthew Taylor MD/ Louis Mestroni MD

Heart Failure/Transplant: David Raymer MD

Imaging (MRI) Danie Groves MD

Imaging (advanced Echo) Edward Gill MD

Nursing Support:  Kristy Gama NP/Cassy Wilkins RN

Co-Director Edward Gill says, “With regard to scientific advancements, we anticipate participating in a number of clinical trials regarding HCM drugs in patients.

The breakthrough myosin inhibitor, Mavacamten, was developed at the University of Colorado at the Cardiovascular Institute at CU Boulder under Leslie Leinwand, Ph.D. Also, Dr. Mestroni has just recently learned of funding of her NIH RO1 grant that deals specifically with cardiac genetics.”

Please join HCMA as we feature The University of Colorado HCM team for our next virtual stop of the Bighearted Warriors Unite tour on May 23 at 8:30 PM EST. Highlights are as follows:  Introductions to the UCHealth team, Comprehensive HCM Center Care, HCM Echocardiography: A Primer for Patients, Kids are Not Little Adults: Unique Issues Affecting Children with HCM, & A Look into the Future: Artificial Intelligence & Gene Therapy for HCM. Register here for this free event:  https://4hcm.org/inspire_events/bighearted-warriors-unite-featuring-university-of-colorado-hospital/

Please visit for more information about The University of Colorado Hospital – HCM program in Aurora, CO, please visit:  https://4hcm.org/university-of-colorado-hospital/

Stacey Titus, Center of Excellence Coordinator

For more information on all HCMA Recognized Centers of Excellence, please visit  https://4hcm.org/center-of-excellence/.

HCMA Blog

Lisa's Letter - July Newsletter

By Lisa Salberg • July 3, 2025
Summer, greetings to all our big-hearted friends As July approaches, our focus is already on the fall and preparing for some major events, including our annual meeting coming up in October. July will also find us on the west coast in Seattle conducting a regional patient education meeting as part of our big-hearted warrior tour. We have been following the generic drug quality issue in the United States very closely and encourage you to watch the series starting with our Hill briefing in April and following with the additional webinars with our partners at Medshadow and the People's Pharmacy, and of course the ProPublica series of articles. See them all here . We are happy to have a new team member on board - we welcome Pam as our coordinator of both our All Hearts Collaborative and Hearts and Minds project. Over the next few months, you're going to be learning more about these two amazing initiatives and how we are working to provide better services for big hearts regardless of where you live, so we are meeting all of our big-hearted friends where they are. Please stay tuned for updates from these projects coming soon. We are also creating new volunteer opportunities and engagements that we hope will make it easier for you to participate in spreading the message of the importance of diagnosis, the importance of community readiness related to CPR and AED use and, of course, helping patients get to their ultimate diagnosis and getting them on the proper treatment pathways. This July I would like to recognize all of the special birthdays in my family, including HCMA Center of Excellence coordinator, Stacey Titus-brown and my daughter Rebecca Salberg. It's a milestone birthday for Becca - it’s hard to believe I have a 30-year-old child. Wishing you all a happy and healthy summer. Go build some memories!
An official seal in black & red with white letters that say HCMS Recognized Centers of Excellence

July's Topic is COE Care at the HCMA

By Sabrina Cuddy • July 3, 2025
Getting HCM care at a HCMA Recognized Center of Excellence has a positive impact on patient's outcomes. Find out why in the post by Health Educator Sabrina Cuddy

Pro Publica Releases Results of FDA Investigation

By Erica Friedman • June 26, 2025
Investigative journalists Debbie Cenziper, Megan Rose, Brandon Roberts and Irena Hwang from Pro Publica and NPR have concluded a 14-month long investigation into the quality of generic drugs coming into the United States from overseas. Among the many voices that spoke up for American patients was HCMA Founder and CEO, Lisa Salberg who has felt the effects of low-quality drugs personally. Salberg believes that fixing this problem is something we can do, even in this time, when even health care is highly politicized. Read the key takeaways from ProPublica’s 14-month investigation into the FDA’s oversight of foreign drugmakers in Threat in Your Medicine Cabinet: The FDA’s Gamble on America’s Drugs .
More Posts