Our latest Blogs & News

You must advocate for yourself to get the best care for your HCM. The first step is to have a plan that includes the tests you need and how often to see your cardiologist. To make planning easier, the HCMA offers Navigation Calls. We encourage everyone with HCM to complete our Intake and Navigation Call at least… The post The HCMA theme for January is Setting Your Plan For The Year appeared first on Hypertrophic Cardiomyopathy Association.

Why practice gratitude? Gratitude has benefits for both mental and physical health as well as our relationships with those around us. When we’re thankful for anything positive in our lives, it leads to a shift in mindset that helps us feel better and take action to stay as healthy as possible. What can you think… The post The HCMA theme for December is Gratitude appeared first on Hypertrophic Cardiomyopathy Association.

At the HCMA, November is when we’re thinking about weight management. We all know that winter months and holiday foods can lead to potential weight gain, and it happens to the best of us. It’s easy to gain weight with all the less healthy options in front of us – face it, we all love… The post Holiday Weight Management appeared first on Hypertrophic Cardiomyopathy Association.

Treating the whole person is essential because your mind, emotional state, and physical symptoms interact. One example is that you can increase an arrhythmia by becoming anxious when it happens. It’s natural to be anxious when your heart does something unusual, but through slow breathing, relaxation, and other coping techniques, you can help yourself feel… The post It’s Emotional Wellness October! appeared first on Hypertrophic Cardiomyopathy Association.

If you have been experiencing symptoms of obstruction, such as shortness of breath, exercise intolerance, light-headedness, or fainting, despite using medications, it might be time to consider septal reduction. The most appropriate septal reduction therapy for each patient depends on several factors, which you can discuss with your HCM team. If you need assistance understanding… The post Septal Reduction September appeared first on Hypertrophic Cardiomyopathy Association.

The HCMA is happy to announce our new sponsor Viz.ai  in the coming months, you will be invited to a webinar to learn more about their methods to detect the undiagnosed.  We plan to work closely with our Recognized Centers of Excellence to find the right methods of implantation of AI solutions to aid in… The post New Sponsor- Viz.ai appeared first on Hypertrophic Cardiomyopathy Association.

Clinical Trials: Innovation has come to HCM through new therapeutic options under investigation. Several trials are open, and several more are planned for later this year or early 2025.  So, what is a Clinical Trial? A Clinical trial is a research study that tests a medicine, surgical, or behavioral treatment to see if it works. … The post How patients and families can help build an understanding of HCM care, awareness, and advocacy appeared first on Hypertrophic Cardiomyopathy Association.

The HCMA is proud to recognize 51 Centers of Excellence (COE), where patients can be confident they will be cared for by knowledgeable, skilled HCM experts. However, the distance and financial resources needed to reach a COE can be a burden for families. That’s why the HCMA started the Lori Fund in 2023. The Fund… The post HCMA Lori Fund appeared first on Hypertrophic Cardiomyopathy Association.

We understand that having a new diagnosis or changes in your condition can be daunting, but please know you’re not alone. The HCMA is here to support you every step of the way! In addition to the helpful info in this newsletter and on our website, we encourage you to contact us for an Intake… The post Are you newly diagnosed with HCM, or have your symptoms recently changed? appeared first on Hypertrophic Cardiomyopathy Association.

Have you ever wondered what a Center of Excellence (COE) is? A COE is a dream team of specialists who work together to provide top-notch care to patients with specific diseases. They follow the best, most up-to-date practices. Many medical facilities strive to become a COE by forming a dedicated team that focuses on treating… The post July is about COE Care at the HCMA!  appeared first on Hypertrophic Cardiomyopathy Association.

Lisa Salberg, CEO and Founder, and I will host two Meet and Greets during our travel on the West Coast in July! La Jolla, CA, “Meet and Greet” on Thursday, July 18th,  at Olive & Basil from 6:00 – 8:00 PM PT.  Space is limited, so we ask all to register by July 16th for proper headcount and to ensure enough… The post HCMA West Coast Tour appeared first on Hypertrophic Cardiomyopathy Association.