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Older Posts

April’s Topic is Genetic Testing

March 24, 2025
Who should have genetic testing, and when?
A photo-realistic image of heart, lit from behind, on a black background.

Arrhythmia is the HCMA topic for March

March 11, 2025
Health educator Sabrina Cuddy discusses common arrhythmias in HCM, like atrial flutter/fibrillation, ventricular tachycardia/fibrillation, left or right bundle branch block, PVC, PAC, and others. Some arrhythmias are harmless, while others are serious and need treatment.
Chart representing mavacamten trial results with total patients, and results in blue bar format.

Camzyos is Safe

By Gordon Fox • March 10, 2025
Camzyos provided significant reduction of obstruction. Initially all patients were obstructed (that is, they had gradients of at least 30mmHg after valsalva maneuvers). After 3 months on Camzyos, about 57% were no longer obstructed. After 6 months, about 70% had no obstruction.
Coronavirus being injected with syringe, with vaccine bottle next to it.

COVID-19 vaccine with HCM?

By Gordon Fox • March 10, 2025
The COVID vaccine offers significant benefits with small risks. Not getting vaccinated offers no substantial benefits and fairly large risks. This is the reason HCM specialists unanimously and strongly recommend vaccination.
A red heart, black block letters that read HCMA, w/a white heartbeat through the center

The HCMA theme for January is Setting Your Plan For The Year

By Sabrina Cuddy • December 23, 2024
The first step to advocating for yourself to get the best HCM care possible is to have a plan that includes the tests you need and how often to see your cardiologist. To make planning easier, the HCMA offers Navigation Calls. We encourage everyone with HCM to complete our Intake and Navigation Call. The post The HCMA theme for January is Setting Your Plan For The Year appeared first on Hypertrophic Cardiomyopathy Association.

The HCMA theme for December is Gratitude

By Sabrina Cuddy • November 20, 2024
Gratitude has benefits for both mental and physical health as well as our relationships with those around us. When we’re thankful for anything positive in our lives, it leads to a shift in mindset that helps us feel better and take action to stay as healthy as possible. The post The HCMA theme for December is Gratitude appeared first on Hypertrophic Cardiomyopathy Association.

Holiday Weight Management

By Sabrina Cuddy • November 5, 2024
At the HCMA, November is when we’re thinking about weight management. We all know that winter months and holiday foods can lead to potential weight gain, and it happens to the best of us. It’s easy to gain weight with all the less healthy options in front of us – face it, we all love… The post Holiday Weight Management appeared first on Hypertrophic Cardiomyopathy Association.

It’s Emotional Wellness October!

By Sabrina Cuddy • October 9, 2024
Treating the whole person is essential because your mind, emotional state, and physical symptoms interact. One example is that you can increase an arrhythmia by becoming anxious when it happens. It’s natural to be anxious when your heart does something unusual, but through slow breathing, relaxation, and other coping techniques, you can help yourself feel… The post It’s Emotional Wellness October! appeared first on Hypertrophic Cardiomyopathy Association.

Septal Reduction September

By Sabrina Cuddy • September 3, 2024
If you have been experiencing symptoms of obstruction, such as shortness of breath, exercise intolerance, light-headedness, or fainting, despite using medications, it might be time to consider septal reduction. The most appropriate septal reduction therapy for each patient depends on several factors, which you can discuss with your HCM team. If you need assistance understanding… The post Septal Reduction September appeared first on Hypertrophic Cardiomyopathy Association.

New Sponsor- Viz.ai

By Olivia Esposito • August 13, 2024
The HCMA is happy to announce our new sponsor Viz.ai  in the coming months, you will be invited to a webinar to learn more about their methods to detect the undiagnosed.  We plan to work closely with our Recognized Centers of Excellence to find the right methods of implantation of AI solutions to aid in… The post New Sponsor- Viz.ai appeared first on Hypertrophic Cardiomyopathy Association.

How patients and families can help build an understanding of HCM care, awareness, and advocacy

By Linda Montgomery • August 8, 2024
Clinical Trials: Innovation has come to HCM through new therapeutic options under investigation. Several trials are open, and several more are planned for later this year or early 2025.  So, what is a Clinical Trial? A Clinical trial is a research study that tests a medicine, surgical, or behavioral treatment to see if it works. … The post How patients and families can help build an understanding of HCM care, awareness, and advocacy appeared first on Hypertrophic Cardiomyopathy Association.

HCMA Lori Fund

By Elena Morgan • August 7, 2024
The HCMA is proud to recognize 51 Centers of Excellence (COE), where patients can be confident they will be cared for by knowledgeable, skilled HCM experts. However, the distance and financial resources needed to reach a COE can be a burden for families. That’s why the HCMA started the Lori Fund in 2023. The Fund… The post HCMA Lori Fund appeared first on Hypertrophic Cardiomyopathy Association.
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