Hypertrophic Cardiomyopathy Association International

Helping Patients Worldwide

Hypertrophic Cardiomyopathy Association International (HCMAi) is a division of HCMA dedicated to reaching out to other countries with HCMA’s tremendous library of information and tools for patients and healthcare providers. These are now being translated into languages that can help people around the globe improve their understanding and ability to manage their HCM journey.

International Partners

Of the 16-33 million HCM patients in the world, many (possibly even most)

have little access to current diagnostic, treatment or medication information.


International Goals

  • Support HCM patients everywhere
  • Grow awareness of HCM worldwide
  • Help patients find advanced treatment 
  • Build advocacy and support networks 
  • Collaborate with existing organizations
  • Create structure where needed
  • Spread the word

How to Get Involved

Step One: Bring People to the Table


Patient Spokespeople

•  Tell about the HCM journey in that

country

•  Influence governments and payors


Healthcare Provider Champions

•  Speak out for better professional

training

•  Provide and support more access to treatment


Sponsor Representatives

•  Share understanding

•  Make introductions

•  Provide financial support

Step Two: Create Custom Resources


Customized by Country, Based on:

•  Healthcare system

•  Centers of Excellence level care locations

•  Language

Educational/Advocacy Resources

•  Region-specific networks

•  Patients

•  Healthcare Providers

•  Clinics

•  Custom Web Pages

•  Special Groups on Social Media


Step Three: Invite the World!

•  Talk about HCMAi in your own channels

•  Link to HCMAi

•  Refer international contacts to HCMAi

Michele Packard-Milam

International Development Lead

michele@4hcm.org

973-983-7429



Juliana Crem

International Coordinator

juliana@4hcm.org


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