News & Updates
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Corewell Health (Formerly Spectrum Health) HCM Program – Grand Rapids, Michigan
The Hypertrophic Cardiomyopathy Program at Corewell Health (formerly Spectrum Health) in Grand Rapids, Michigan, was founded in 2013 and recognized as an HCMA Center of Excellence…
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Beware of “Alternative” Funding Programs When Choosing Your Health Plan
By: Lisa Salberg, Founder and CEO Hypertrophic Cardiomyopathy Association A new health insurance workaround could endanger the health of patients, particularly those with chronic illnesses like…
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ORCCA Study
The ORCCA study aims to prospectively monitor clinical outcomes in athletes with potentially life‐threatening cardiovascular conditions. The study will assess long‐term cardiovascular outcomes, psychosocial well‐being, and…
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Trial Participation- There Is Still Time to Join!
HCM Clinical Trial Opportunities We’ve been urging you to learn a few important points about your disease because HCM has various presentations and important metrics. Knowing…
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Volunteer!
We have the plan and the road map and, with the help of our volunteers, we will reach our destination to ensure our mission to provide…
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ODYSSEY nHCM (Aka Hypertrophic Cardiomyopathy without Obstruction)
We are looking for HCM patients without obstruction experiencing shortness of breath, palpitations, tiring easily, and want to be in a clinical trial. In this trial,…
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The HCMA Theme for January Is Setting Your Plan for the Year
You must advocate for yourself to ensure you get the best care for your HCM. An essential first step is having a plan that includes the…
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Septal Myectomy and Alcohol Septal Ablation: How Safe and Effective?
Background A new meta-analysis ( Yokohama et al. 2023) on the comparative success and safety of the two methods of septal reduction therapy – alcohol septal…
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Reasonable Accommodations
Through collaboration with Reasonable Accommodations LLC, the HCMA has expanded some of our COE directories. This expansion will make it easier to find travel information, places…
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Volunteer!
Our volunteers give the HCM community so many things to be grateful for! They generously share their hearts, experiences and time to help so many and…
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Duke Hypertrophic Cardiomyopathy Center – Durham, NC
Duke Hypertrophic Cardiomyopathy Center – Durham, NC The Duke Hypertrophic Cardiomyopathy Center has been an HCMA Center of Excellence since 2018 and is a part of…
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Fall Conferences
The Hypertrophic Cardiomyopathy Association played a key role at this fall’s HFSA and AHA conferences, actively engaging as exhibitors and offering valuable educational opportunities for the…
