Sabrina Cuddy • June 28, 2023
July is about COE Care at the HCMA

What is a Center of Excellence (COE)? 

A Center of Excellence is a team of specialists who come together to provide high-quality care to patients with a specific disease using accepted best practices. It is common for medical facilities to seek COE status if they have a team working with a particular disease, such as Cancer, Diabetes, Alzheimer’s, or, of course, HCM.

The HCMA created the “HCMA Recognized Centers of Excellence” program in 2004. This program ensures that the services and procedures offered at recognized COEs align with current best practices for managing patients with HCM. Centers must use a team approach to care, including HCM specialist cardiologists, genetic counselors, imaging specialists, and more. In addition, a COE has up-to-date equipment and scanning protocols, with technicians trained to get the right angles during your testing. 

The American Heart Association and the American College of Cardiologists support this model of care in their best practice guidelines for HCM, 2020. 

For a list of centers, please visit our website at  https://4hcm.org/center-of-excellence/. You can also see the criteria used in the review of these programs. We currently recognize COEs in the United States, but we can often recommend somewhere for you to go if you are in another country – please contact us for more information. The HCMA continues to grow new programs and evaluate them for COE status. We want you to have COE care near your home.

We also offer need-based travel grants to help people get the best care for HCM. Call us at 973-983-7429 and ask about the Lori Fund, or apply on our website.  https://secure.4hcm.org/forms/lori-fund-scholarship   The Lori Fund can reimburse you for gas, airfare, hotel, and food up to $600 annually to help you get to a Center of Excellence. 

The HCMA theme for January is Setting Your Plan For The Year

By Sabrina Cuddy • December 23, 2024
You must advocate for yourself to get the best care for your HCM. The first step is to have a plan that includes the tests you need and how often to see your cardiologist. To make planning easier, the HCMA offers Navigation Calls. We encourage everyone with HCM to complete our Intake and Navigation Call at least… The post The HCMA theme for January is Setting Your Plan For The Year appeared first on Hypertrophic Cardiomyopathy Association.

The HCMA theme for December is Gratitude

By Sabrina Cuddy • November 20, 2024
Why practice gratitude? Gratitude has benefits for both mental and physical health as well as our relationships with those around us. When we’re thankful for anything positive in our lives, it leads to a shift in mindset that helps us feel better and take action to stay as healthy as possible. What can you think… The post The HCMA theme for December is Gratitude appeared first on Hypertrophic Cardiomyopathy Association.

Holiday Weight Management

By Sabrina Cuddy • November 5, 2024
At the HCMA, November is when we’re thinking about weight management. We all know that winter months and holiday foods can lead to potential weight gain, and it happens to the best of us. It’s easy to gain weight with all the less healthy options in front of us – face it, we all love… The post Holiday Weight Management appeared first on Hypertrophic Cardiomyopathy Association.
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