Stacey Titus • November 28, 2023
Duke Hypertrophic Cardiomyopathy Center –  Durham, NC

Duke Hypertrophic Cardiomyopathy Center –  Durham, NC

The Duke Hypertrophic Cardiomyopathy Center has been an HCMA Center of Excellence since 2018 and is a part of the Duke Heart Center in Durham, North Carolina. “We have created a dedicated, multi-disciplinary team of physicians, nurses, advanced practice providers, and genetic counselor who are focused on providing personalized, high quality, and evidence-based case for patients with HCM and improving the knowledge of this condition and its treatments. We were very pleased to describe the work of our experienced HCM team members at the recent HCMA Big Hearted Warriors Tour on November 16, 2023.”  Duke’s recent Bighearted Warrior Webinar:  https://www.youtube.com/watch?v=nW4U1hYvZAE

Dr. Andrew Wang the director of the Duke Hypertrophic Cardiomyopathy Center, and because of the growing population in this area and HCM patients seeking expertise for their care, we have an additional cardiologist (Dr. Deepa Upadhyaya, with expertise in cardiac imaging) available to see patients in a timely manner.  The practice can accommodate same-day testing in the same convenient location for HCM care, including genetic counseling and testing, and coordinate other tests and consultations.  The cardiac MRI team is highly experienced in the evaluation of HCM and was one of the first groups to describe the ability of MRI to identify and quantify scar in the heart muscle of many HCM patients.  Duke’s heart surgeon, Dr. Carmelo Milano, is highly experienced in surgical myectomy and mitral valve repair in HCM, and a leader in heart transplantation as well.  Our Duke Heart Center is consistently among the centers in the US with the highest annual heart transplant numbers, with shortlisting times for patients requiring urgent treatment.

The Duke Hypertrophic Cardiomyopathy Center includes:

-Andrew Wang, MD     HCM Program Director

-Carmelo Milano, MD     Surgeon (Myectomy and Transplant)

-James Daubert, MD     Adult Electrophysiology

-Adam DeVore, MD       Advanced Heart Failure and Heart Transplantation

-Todd Kiefer            Interventional Cardiology

-Deepa Upadhyaya, MD   HCM Cardiologist and Echocardiography

– Kaitlyn Amos, MS, CGC    Genetic Counselor

– Han Kim, MD           Cardiac MRI

-Andrew Landstrom, MD  Pediatric Cardiology

-Michael Carboni, MD    Pediatric Electrophysiology

Please visit for more information about Duke Hypertrophic Cardiomyopathy Center in Durham, NC

please visit:  https://4hcm.org/duke/


For more information on all HCMA Recognized Centers of Excellence, please visit:  https://4hcm.org/center-of-excellence/.

HCMA Blog

Lisa's Letter - July Newsletter

By Lisa Salberg • July 3, 2025
Summer, greetings to all our big-hearted friends As July approaches, our focus is already on the fall and preparing for some major events, including our annual meeting coming up in October. July will also find us on the west coast in Seattle conducting a regional patient education meeting as part of our big-hearted warrior tour. We have been following the generic drug quality issue in the United States very closely and encourage you to watch the series starting with our Hill briefing in April and following with the additional webinars with our partners at Medshadow and the People's Pharmacy, and of course the ProPublica series of articles. See them all here . We are happy to have a new team member on board - we welcome Pam as our coordinator of both our All Hearts Collaborative and Hearts and Minds project. Over the next few months, you're going to be learning more about these two amazing initiatives and how we are working to provide better services for big hearts regardless of where you live, so we are meeting all of our big-hearted friends where they are. Please stay tuned for updates from these projects coming soon. We are also creating new volunteer opportunities and engagements that we hope will make it easier for you to participate in spreading the message of the importance of diagnosis, the importance of community readiness related to CPR and AED use and, of course, helping patients get to their ultimate diagnosis and getting them on the proper treatment pathways. This July I would like to recognize all of the special birthdays in my family, including HCMA Center of Excellence coordinator, Stacey Titus-brown and my daughter Rebecca Salberg. It's a milestone birthday for Becca - it’s hard to believe I have a 30-year-old child. Wishing you all a happy and healthy summer. Go build some memories!
An official seal in black & red with white letters that say HCMS Recognized Centers of Excellence

July's Topic is COE Care at the HCMA

By Sabrina Cuddy • July 3, 2025
Getting HCM care at a HCMA Recognized Center of Excellence has a positive impact on patient's outcomes. Find out why in the post by Health Educator Sabrina Cuddy

Pro Publica Releases Results of FDA Investigation

By Erica Friedman • June 26, 2025
Investigative journalists Debbie Cenziper, Megan Rose, Brandon Roberts and Irena Hwang from Pro Publica and NPR have concluded a 14-month long investigation into the quality of generic drugs coming into the United States from overseas. Among the many voices that spoke up for American patients was HCMA Founder and CEO, Lisa Salberg who has felt the effects of low-quality drugs personally. Salberg believes that fixing this problem is something we can do, even in this time, when even health care is highly politicized. Read the key takeaways from ProPublica’s 14-month investigation into the FDA’s oversight of foreign drugmakers in Threat in Your Medicine Cabinet: The FDA’s Gamble on America’s Drugs .
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