Lisa Salberg

Founder, Board Director, Vice Chair

Lisa Salberg, Founder, and CEO of the HCMA, began on the journey to educate, advocate, and support other patients based on her experience with HCM. This included medical errors that nearly cost her life, the death of her sister - also due to medical errors- and the diagnosis of several family members.

Lisa has published three books on HCM (available on this site) and several peer-reviewed journal articles spoken internationally on HCM. She has appeared in TV and print interviews advocating for patients' rights, research, and raising awareness of HCM.

Read more about our founder's family here

I was diagnosed at 12yrs old (knowing the family history of HCM with the loss of my grandfather in 1953).

Tragedy struck with the loss of my sister at age 36 in 1995. She was diagnosed with HCM but was mismanaged. This was on the forefront of my mind constantly and preempted me
to create the non-profit HCMA in 1996 to advocate for HCM awareness, education, resources, research, and support.

We have helped thousands of HCM patients in the United States and the association continues to grow each year, including recent international outreach as well.

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