Susan Shapiro retired as a Client Relationship Manager from Voya Financial in April 2020 after a 30 year career of working with corporate sponsors of 401(k) plans. Starting in April of 2017, Susan also joined the leadership team of Indivisible Lambertville (NJ)/New Hope (PA), a grass-roots activist organization dedicated to electing progressive candidates, defending democracy and holding elected representatives accountable to their constituents. After moving to Flagstaff, AZ, Susan founded Indivisible Northern AZ in order to continue her activism.

Susan’s family has a long history of HCM and SCD. After being “cleared” several times, Susan was finally correctly diagnosed with HCM in December 2010 and received an ICD shortly thereafter. After losing another family member to HCM, Susan used what she had learned from the HCMA as she set out to educate her family members about risk assessment, genetic testing, and COEs in hopes of preventing another tragedy. Susan looks forward to using her experience to help expand awareness of HCM, and of the programs offered by the HCMA to improve outcomes and save lives.

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