Knowing that I would eventually need a heart transplant, the HCM clinic put me in touch with a top-rated transplant hospital in NYC. Throughout the summer and fall of 2020, I went through a series of tests to evaluate me for placement on the transplant list. I was very reluctant to get a heart transplant because I had recently gone through the entire process with my brother, and I saw just how difficult it could be. And in the end, he experienced the worst possible outcome. However, in January of 2021, I went into the transplant hospital for a routine outpatient test, only to find out that my heart was in worse shape than it had been six months earlier. I was then admitted to hospital for a few days of inpatient treatment. Unfortunately, the treatment was unsuccessful, thus, it was determined that I needed a transplant immediately. I struggled with the reality of this because I was hoping that we could hold off the transplant for a few more years. I wanted to “kick the can down the road” for as long as possible.  I had previously read online that the life average expectancy for a heart transplant was about 10-13 years. In my mind, this gave me a predetermined “shelf-life” once I had the transplant. I also did not want to sit in the hospital for months on end, waiting for an organ to become available, as my brother did. I was also very afraid of having to go through the surgery and the recovery process. Unfortunately for me, I had no other choice but to go through with it.

Four days after being admitted into the hospital, I was placed on the transplant list.  I was extremely blessed, and I received my new heart seven days after being placed on the list. This was not a normal occurrence. The post-transplant recovery was difficult, but I was also blessed in that regard as well. I was released from the hospital eleven days after surgery and back at work in six months. Although I had to endure some tough times, including a stage where I was taking upwards of 72 pills a day, all is now good.  

Discovering that HCM is hereditary has significantly impacted my family. I have since found out that some of my siblings have it as well. We are urging our kids to get screened for HCM as well. They too are Olympians and world-class athletes like me. Since intense exercise places significant demands on the heart and can lead to mild thickening of the heart, it can be harder to see HCM forming. Of course, no athlete wants to hear that they might have a heart problem which could limit what they can do! But it is better to know than not know. There is also an emotional toll of this disease on all of us as well.  I used to feel like I was walking around with a ticking time-bomb in my chest that I could not escape. Not fully understanding the disease created a lot of uncertainty and fear in my life.. This was no way to live. Luckily, today I have recovered from my heart transplant and am looking forward to living beyond HCM.