News & Updates
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Decisions in HCM: Understanding Risk
by Gordon Fox: 3rd in a series Risk is a concept we have encountered many times during our HCM journeys, and we want to help you…
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Reflections from Capitol Hill 2025
I do not claim to be a political expert, but I do know what I am – a passionate patient advocate who has seen how systems…
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Lisa’s Letter – May Newsletter
Greetings to all of our Bighearted friends, We have certainly had an eventful April and there are many updates in this letter to bring you up…
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Learn Your Medical Therapy Options for HCM This Month
Medical Management means using medicines and other non-invasive therapies to relieve symptoms. The FDA approved Camzyos in 2022 and It’s exciting that new treatments for HCM…
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Decisions in HCM: Why Are They So Hard?
by Gordon Fox: 2nd in a series Making decisions can be hard, and this is especially true when health is involved. A key reason is that…
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Camzyos® Receives Manufacturing and Marketing Approval for HOCM in Japan
2025/03/27 Bristol-Myers Squibb Company Translated from JapaneseRead the original press release (Japanese) Download the pdf file (Japanese) *The information contained in this press release (including information…
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US FDA Updates Camzyos Label for oHCM
U.S. Food and Drug Administration Updates CAMZYOS® (mavacamten) Label to Reduce Echocardiography Monitoring Requirements and Contraindications for Obstructive HCM Label updates include simplified twice-yearly echo monitoring…
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Press Release: Piedmont Heart Recognized as an HCM COE
Piedmont’s Hypertrophic Cardiomyopathy Program Recognized as an HCMA Center of Excellence April 18, 2025 Piedmont Heart has been recognized as a Center of Excellence by the…
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Lisa’s Letter – April Newsletter
It is hard to believe the first quarter of 2025 is in the history books. In the space of hypertrophic cardiomyopathy and thick heart muscle disorders,…
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Decisions in HCM, How to Identify, Analyze and Evaluate Decisions in Your HCM Life
by Victoria-Theresa Wyatt and Gordon Fox: First in a series What is Shared Decision-Making? Shared decision-making is a term used a lot in healthcare settings and…
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HCMA Gifted $1500 Harrah’s Grant
HCMA Gifted $1500 Harrah’s “Funner Model Citizen Share the Wealth” Grant By Award Winner Terri Loviato April 10, 2025 Harrah’s Southern California Resort in Funner, CA…
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April’s Topic Is Genetic Testing
Who should have genetic testing, and when? Suppose you have been diagnosed with HCM through an EKG, echocardiogram, and a visit with a cardiologist. Most experts…
