Faces of HCM
-

Dominic Venti
For Dominic, life before his HCM diagnosis was fairly normal. He was active and enjoyed being outdoors. However, for any kind of distance running,…
-

Elizabeth Wessman
Hypertrophic Cardiomyopathy – “It took me three days to even learn how to say it!”.Elizabeth Wessman has lived all over the United States, most…
-

Garret Lyons
Garrett Lyons of Colorado passed away peacefully into our lord’s loving protective graces in 2022.
-

Heather Wartenberg
Doctors had always given one explanation or another for her symptoms, but nothing related to her heart.
-

Jillian Blair
How a doctor knowing the right questions to ask could have saved Jillian’s life:
-

John Orlando
My HCM story began when I was 25, during a routine visit with a new doctor who discovered a heart murmur.
-

Joseph Caruso
My family means everything to me. For a long time, I couldn’t keep up with them and was afraid to make future plans. Even…
-

Julia Mosher
They did not go into much detail, causing Julia to believe that she was just lazy and not that her symptoms resulted from a…
-

Justin Alan Vigile
Justin Alan Vigile, age 35, passed away suddenly on Monday, July 28, 2025, in Dallas, TX. Born on September 25, 1989, in Philadelphia, PA,…
-

Karen Newstrom
Karen’s family has a long history of HCM and sudden cardiac arrest. There are four generations confirmed with a diagnosis of HCM and suspicion…
-

Kay Julius
HCM, it’s a family thing.In 1982, my mom was diagnosed with hypertrophic cardiomyopathy (HCM); she was in her early 40s. In 1985, when I…
-

Kelly Sidebottom
My obvious symptoms started with my second pregnancy when I went into active labor at 26 weeks. Up to then, I was clueless as…
-

Kent Sperry
When I was diagnosed with HCM, at the age of 37, my wife was pregnant with our 5th child. The diagnosis hit me very…
-

Kim Walsh
Growing up, Kim Walsh was very athletic. She recalls that many times while doing physical activity, she would have difficulty keeping up with her…
-

Kristen Arechiga
I was diagnosed with Hypertrophic Cardiomyopathy in 1983, at 16 months old. I suspect that other family members on my mother’s side may have…
-

Larry Flanigan
Husband, father, grandfather, fisherman, golfer, fireman, and first aid/EMT
-

Lauren Donoghue Cinelli
My name is Lauren Donoghue-Cinelli, I’m forty years old, and from the Boston, MA suburbs. I’m married and work in marketing for an events…
-

Leigh Maupin
“My hope is that through awareness, future generations will have easier access to the treatments they need. I hope pediatricians will know the signs…
-

Linda Morzillo
During a routine checkup at our family doctor’s office during the early 2000s, my doctor heard a heart murmur for the first time. A…
-

Lisa Salberg
I was 12 years old, and standing in the school nurse’s office waiting to get my heart listened to. The doctor, a little old…
-

Lisa Vecchione
How breaking my nose may have saved my life: Lisa Vecchione is from Springfield, New Jersey. She was diagnosed with HCM at the age…
-

Lori Flanigan
January 9, 1959 – June 16, 1995Lori’s life reminds me of a butterfly – beautiful and short-lived. She has been gone since 1995 however…
-

Lynda Neuhausen
When I was 39 years old, my family and I were heading to our nosebleed seats at a baseball game. When we reached our…
-

Marla Kennedy
Marla received a diagnosis of hypertrophic cardiomyopathy (HCM) at age 59. Her mother had a heart attack around the same age but did not…
